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ME/CFS Outcome unclear

ME/CFS with leg pain and hours in bed when stressed; CBD oil helped

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill for
Not stated
Last post
Nov 2018
In their words
  • Condition: ME/CFSI trained like a fighter pre-CFS and kept the internal arts and lightened my kickboxing practice post-CFS, anything more and I'm exhausted for a couple weeks. In context ↗
  • At worst: MildI practice light internal Gong Fu or Qi Gong whenever I can ... anything more and I'm exhausted for a couple weeks In context ↗
Read from 3 of their posts and comments; links to the 3 this page draws on

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Summary

Nightjar 63481 trained as a fighter before ME/CFS; the first symptom was being barely able to get out of bed for hours when extremely stressed or overworked. By 2018 they managed light qigong and lightened kickboxing, but anything more left them exhausted for a couple of weeks. On bad days they needed a cane and had leg pain; CBD oil rubbed on the legs helped tremendously with pain, as did coconut oil.

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What they tried

Their words about each treatment
  • light internal Gong Fu or Qi Gong · Not saidI practice light internal Gong Fu or Qi Gong whenever I can, such as Zhang Zhuang (standing practice) or Ba Duan Jin (Eight Silken Brocades) In context ↗
  • light punches, elbows, knees and kicks (shadow boxing) · Not saidkept the internal arts and lightened my kickboxing practice post-CFS, anything more and I'm exhausted for a couple weeks In context ↗
  • coconut oil · Helpedcoconut oil helps tremendously In context ↗
  • heating pad · HelpedA heating pad helps as well, but only for a short time because it ends up too hot after several minutes. In context ↗
  • CBD oil · Helped a lotIt helps tremendously with pain. ... it's very relaxing and does a good job for quick pain relief. In context ↗
  • deep breaths and concentrating on feeling my feet and legs · HelpedI also take really deep breaths and concentrate on feeling my feet and legs. It helps me feel connected to my body when I am in pain. In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
—first symptom: legs would not workThat was actually the first symptom I ever got. In context ↗Not stated
2018-10-26bad days: needs a cane, hours in bed, leg painOn my bad days I need a cane and one of my old conditions reers its painful head: too much pressure on my left leg and I tear up or break down crying In context ↗Mild
2018-11-12flare-ups continue; CBD oil eases the painOn bad days I rub it on my legs, stomach, and kidneys. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseanything more and I'm exhausted for a couple weeks In context ↗
  • Muscle weaknessWhen my legs are acting up (or feeling like they are decaying, really) In context ↗
  • Pain & fibromyalgiaIt helps tremendously with pain. In context ↗

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