ME/CFS
Mild → no benefitNeeds ongoing treatment
ME/CFS with pain and post-exertional malaise, tried osteopathy and a four-day week
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Mar 2021
In their words
- Condition: ME/CFS
Like most things with m.e. there is no one size fits all therapy
In context ↗ - At worst: Mild
I work a full on job in academia, which has been good as it is a fairly flexible work environment
In context ↗ - Now: No benefit
evenings are crash out time and weekends are sometime very quiet. But generally speaking I maintain balance and life is good
In context ↗
Read from 6 of their posts and comments; links to the 4 this page draws on
Summary
They described ME while working a demanding job in academia, with neck, shoulder and back pain and post-exertional malaise that made exercise hard to keep up. Weekly osteopathy for two months at the end of 2017 helped the pain a lot, though each session left them tired. Moving to a new workplace and cutting to four days a week left their energy and work-life balance far better.
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What they tried
Also tried
Their words about each treatment
- building up exercise · Helped
I could manage building up exercise by having the capacity to recover and was able to build up to 30 minute jogs and playing volleyball
In context ↗ - osteopathy · Helped
I went weekly for 2 months at end of last yr. It helped a lot with the pain.
In context ↗ - reducing to a 4-day week and working from home · Helped
went down to 4 days a week (don't work Fridays) both to help my fatigue and spend a day with my toddler. Has worked brilliantly and my energy and work life balance are far better.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | At university, could build up exercise between lecturesI found while at uni when lectures were sparse I could manage building up exercise by having the capacity to recover and was able to build up to 30 minute jogs and playing volleyballIn context ↗ | Mild |
| end of 2017 | Weekly osteopathy for two months eased painI went weekly for 2 months at end of last yr. It helped a lot with the painIn context ↗ | Mild |
| 2018-04-01 | Neck stiff again and back pain worsemy neck has gotten very stiff again and back pain is worseIn context ↗ | Mild |
| 2018-10-04 | New workplace and four-day week; energy far betterHas worked brilliantly and my energy and work life balance are far betterIn context ↗ | Mild |
| 2019-01-05 | Fatigue still flares; limited to one coffee a dayif my fatigue gets bad I find I can taste the caffeine and it makes me feel sickIn context ↗ | Mild |
Adverse events
- Manual lymphatic drainage“Immediately after each session i felt pretty tired but longer term I felt more opened up and alert.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I try to exercise I don't have the time to recover from the PEM
In context ↗ - Pain & fibromyalgia
my neck has gotten very stiff again and back pain is worse
In context ↗