Long COVID
RelapsedIll 1 year before improving or writing
Long COVID with POTS and breathlessness improved, then worse again after reinfection
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 1 year
- Last post
- Feb 2025
In their words
- Condition: Long COVID
I got covid in 2020 and I had long covid.. POTS, shortness of breath
In context ↗ - Now: Relapsed
after a year, things got better.. I could breathe for the first time in a year ... Fast forward 2023, cut Covid again and developed autoimmune hepatitis.
In context ↗ - Began after: COVID
I got covid in 2020 and I had long covid
Summary
They caught COVID-19 in 2020 and went on to have long COVID with POTS, shortness of breath and a flare of dormant rheumatoid arthritis; their sense of smell returned only partially. After about a year things improved and they could breathe again. A COVID reinfection in 2023 led to autoimmune hepatitis, treated with CellCept and prednisone, and by February 2025 they were still hoping to improve.
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What they tried
Their words about each treatment
- iron · Much worse
they told me my ferritin level was low. Took iron and my who digestion stopped for 7 weeks!
In context ↗ - magnesium citrate · Helped
Drank magnesium citrate .. only thing that worked.
In context ↗ - cellcept · Not said
doc put me on cellcept and prednisone without listening to my concerns or ideas
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| August 2020 | COVID-19 infection, then long COVID with POTS and breathlessnessI got covid in 2020 and I had long covid.. POTS, shortness of breathIn context ↗ |
| 2021 | after a year things got better and they could breathe againafter a year, things got better.. I could breathe for the first time in a year.In context ↗ |
| 2023 | crashed after a COVID reinfection, developed autoimmune hepatitisFast forward 2023, cut Covid again and developed autoimmune hepatitis.In context ↗ |
| 2025-02-09 | still ill with autoimmune hepatitis, hoping to improveHoping that things begin to improve in my body calms down.In context ↗ |
Adverse events
- Iron infusion / ferritin repletion“Took iron and my who digestion stopped for 7 weeks! No kind of BM.” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I had long covid.. POTS, shortness of breath
In context ↗ - Breathlessness
shortness of breath
In context ↗ - Loss of smell or taste
My sense of smell went away, and it came back partially with some mixed up wiring.
In context ↗ - Gut problems
Took iron and my who digestion stopped for 7 weeks! No kind of BM.
In context ↗