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Long COVID Mild → much betterIll 3 years before improving or writing

Long COVID breathlessness and chest pain, now much better with compression stockings and pacing

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
3 years
Last post
Jul 2024
In their words
  • Condition: Long COVID1068 days. 75-80% recovered. In context ↗
  • At worst: MildIn the beginning, I remember wearing sunglasses just to get through the work day. In context ↗
  • Now: Much better75-80% recovered. Pacing and meds are the things that worked so far for me tho this is the best I'll be able to do for now on. In context ↗
  • Began after: COVID1068 days. 75-80% recovered. In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on

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Summary

Meadow 78811 has had long COVID since about August 2021, counting 1068 days at their last post in July 2024. Breathlessness was mostly fixed by compression stockings, but chest pain persisted, and screens were hard to tolerate at first. Pacing, B12 and gradual walking brought slow gains; they rated themselves 75-80% recovered but said they had been stuck at that level.

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What they tried

Also tried

Their words about each treatment
  • medical compression stocking · Helpedmedical compression stocking mostly fixes my shortness of breathe In context ↗
  • pacing · Helpedsticking with pacing. Tho it has been slow, I have improved In context ↗
  • B12 · HelpedB12 and gradual exercise (walking) has helped me as well In context ↗
  • meds · HelpedPacing and meds are the things that worked so far for me In context ↗

Approaches: Pacing · Physiotherapy and rehab · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2021long COVID onset; working through the day with symptomsIn the beginning, I remember wearing sunglasses just to get through the work day. In context ↗Mild
2024-03-12slow improvement with pacingTho it has been slow, I have improved. In context ↗MildPacing and the energy envelope
2024-04-25could stand without breathlessness doing choresB12 and gradual exercise (walking) has helped me as well. Still not at 100% due to other issue but I can stand without SOB while doing daily chores so small wins. In context ↗MildVitamin B12
2024-07-2775-80% recovered and plateaued1068 days. 75-80% recovered. Pacing and meds are the things that worked so far for me tho this is the best I'll be able to do for now on. Been stuck for awhile now. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Breathlessnessmedical compression stocking mostly fixes my shortness of breathe In context ↗
  • Heart symptoms & palpitationsStill dealing with chest pain tho In context ↗
  • Light & noise sensitivityIn the beginning, I remember wearing sunglasses just to get through the work day. In context ↗
  • Sleep problemsDo you know what helped your migraines and insomnia? Pacing will help my other issues but I don't think so for these two. In context ↗

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