Bedbound with long COVID, now near normal after diet and fasting
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4.5 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I had LC before my vax but it was only fatigue and brain fog.
In context ↗ - At worst: Severe
In bed all day month 5 for sure.
In context ↗ - Now: Near normal
My only lingering issues are mild POTS and a bit of brain fog that I can kinda control by fasting.
In context ↗ - Began after: COVID
I also got my first LC in March 2020.
In context ↗
Read from 24 of their posts and comments; links to the 13 this page draws on
Summary
Meadow 87830, a man who first developed long COVID in March 2020, was bedbound all day by month 5. His PEM went away after 8–9 months and fatigue lifted around month 13, allowing full-time work. A no-sugar, no-processed-food diet and weekly 48-hour fasts later cleared his brain fog and dissociation, though mild POTS persisted; his POTS had begun after a second Pfizer shot.
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What they tried
What they credit
Also tried
Their words about each treatment
- Normalyte · Helped
My POTS improved but Normalyte helped me a bunch when it was still bad.
In context ↗ - B1 (thiamine) · Helped
100mg b1 with a B complex vitamin really brought my baseline up.
In context ↗ - forcefully resetting circadian rhythm · Helped
Mine was horrendous all of last year but I fixed it just waking up at a certain time and eating breakfast.
In context ↗ - no carbs and 0 sugar diet · Helped a lot
Down to no carbs and 0 sugar for the past 2 weeks and DPDR is completely gone for the first time.
In context ↗ - time restricted eating and weekly 48 hr fasts · Helped a lot
Began weekly 48 hr fasts while maintaining that diet and my dissociation/brain fog is gone.
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 5 months after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| March 2020 | first long COVID, initially fatigue and brain fogI also got my first LC in March 2020.In context ↗ | Not stated |
| month 5 (around August 2020) | bedbound all dayIn bed all day month 5 for sure.In context ↗ | Severe |
| month 8-9 (around November-December 2020) | PEM and deep malaise resolvedMine went away around month 8-9. I have no PEM now, don't crash at allIn context ↗ | Moderate |
| month 13 (around April 2021) | fatigue resolvedI haven't dealt with fatigue since around month 13.In context ↗ | Mild |
| after 2nd Pfizer shot | POTS started after second Pfizer vaccineImmediately after my 2nd Pfizer shot is when my POTS started.In context ↗ | Not stated |
| 2023-10-04 | working full time; brain fog and POTS remainI've been working full time this entire year. Brain Fog and POTS are my last 2 symptoms that don't seem to budgeIn context ↗ | Mild |
| 2023-11-10 | no carbs/no sugar; DPDR gone, brain fog 50% lessDown to no carbs and 0 sugar for the past 2 weeks and DPDR is completely gone for the first time. Brain fog still there but its a good 50% less.In context ↗ | Mild |
| 2024-05-12 | weekly 48-hour fasts; brain fog/dissociation goneBegan weekly 48 hr fasts while maintaining that diet and my dissociation/brain fog is gone.In context ↗ | Near normal |
| 2024-09-09 | DPDR completely gonemy DPDR is completely gone so it gets better.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
my first year I got it bad every time I pushed myself.
In context ↗ - Brain fog
my dissociation/brain fog is gone.
In context ↗ - POTS & dysautonomia
My only lingering issues are mild POTS
In context ↗ - Sleep problems
My sleep schedule was literally reversed but now I get tired like an old man around 9pm.
In context ↗ - Headaches & migraine
My headaches weren't nearly as bad as yours though.
In context ↗ - Vision problems
Mines definitely not as bad as it was last year.
In context ↗
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