Long COVID with lifelong fatigue, POTS and MCAS, much better with antihistamines and rest
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Jan 2026
In their words
- Condition: Long COVID
But that’s what I did my past infection and it seemed to help reduce severity and duration.
In context ↗ - At worst: Mild
I canceled my gym membership, I use to do intense workouts and will get there again.
In context ↗ - Now: Much better
starting antihistamines and treating my asthma (that I gaslight myself into believing I grew out of) helped so much. Plus not over doing it.
In context ↗ - Began after: another virus
I got MCAS after having RSV as an infant in 2000
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
They reported lifelong fatigue and POTS, plus neuropathy since elementary school from MCAS; they got MCAS and asthma after an RSV infection as an infant in 2000. They said stimulant medicine changed their life, then later credited antihistamines, asthma treatment, rest, not overdoing it, lower stress and cutting sugar with helping, and said their MCAS and neuropathy were slowly improving. By January 2026 they could walk and do light band exercises but still avoided housework and intense workouts while recovering.
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What they tried
What they credit
Also tried
Their words about each treatment
- armodafinal · Not said
I take armodafinal because I have POTS.
In context ↗ - adderall · Helped
I resisted but eventually tried it. I was like wow, this is what everyone else feels like ??? No wonder they can function easily, wow!
In context ↗ - antihistamines · Helped
starting antihistamines and treating my asthma (that I gaslight myself into believing I grew out of) helped so much
In context ↗ - asthma medicine · Helped
starting medicine improved my life so much!
In context ↗ - rest and not overdoing it · Helped
But time, rest and treating my asthma/MCAS has helped.
In context ↗ - cutting out sugar · Helped
I felt this way with sugar too, it was horrible to cut out but truly helped so much.
In context ↗
Approaches: H1 antihistamines · Diet · Pacing · Stimulants
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were | After |
|---|---|---|---|
| 2000 | RSV infection as an infant; later MCAS, asthma and lifelong fatigueI got MCAS after having RSV as an infant in 2000In context ↗ | Not stated | |
| 2024-08-29 | Stimulant medicine changed their lifeI found taking medicine changed my entire life.In context ↗ | Not stated | Modafinil / armodafinil |
| 2025-09-05 | MCAS more controlled and neuropathy slowly improvingmy MCAS is more controlled and my neuropathy is slowly getting better!In context ↗ | Not stated | |
| 2026-01-01 | Antihistamines, asthma treatment, rest and pacing helped; still building up activityI walk and do light band exercises when I have extra energy.In context ↗ | Mild | H1 antihistamines (unspecified) |
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I take armodafinal because I have POTS.
In context ↗ - Mast cell (MCAS) & allergies
my MCAS is more controlled
In context ↗ - Neuropathy & tingling
my neuropathy is slowly getting better!
In context ↗ - Post-exertional malaise
It’s really cut down on my recovery time compared to when I didn’t ask for help and did it all myself.
In context ↗
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