ME/CFS
Very severe → no benefitIll for 3 years
ME/CFS after COVID, now largely bedridden and worse after pushing through
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill for
- 3 years
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I got sick at 24, still am so at 27.
In context ↗ - At worst: Very severe
My husband has to help me shower, often hold me up in the toilet so I won't fall, has to bring me the food to bed
In context ↗ - Now: No benefit
In the beginning of my disease I could even go out of the house alone for short periods of time ... I've only gotten worse
In context ↗ - Began after: COVID
after my covid infection
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Kestrel 55337 became ill with ME/CFS after a COVID infection at age 24 and was still ill at 27. Early on they could leave the house alone for short periods and use public transport; after following a psychologist's advice to push through discomfort they became much worse. By the latest post they were largely bedridden, needing help to shower, to stay upright on the toilet and to be brought food, and said they had only got worse.
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What they tried
Also tried
Their words about each treatment
- basic physiotherapy · Not said
I was offered nothing more than basic physiotherapy initially after my covid infection
In context ↗ - psychologist · Much worse
then told to go to a psychologist to "manage stress"
In context ↗ - push through discomfort · Much worse
The psychologist told me to "push through discomfort" and I did and I got much much worse.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 24 | fell ill after a COVID infection; at first could go out alone briefly and use public transportI got sick at 24 ... In the beginning of my disease I could even go out of the house alone for short periods of time and even handled public transport.In context ↗ | Moderate |
| — | followed a psychologist's advice to push through discomfort and became much worseI did and I got much much worseIn context ↗ | Severe |
| 2026-10-14 | largely bedridden, needs help to shower, to stay upright on the toilet and to be brought foodMy husband has to help me shower, often hold me up in the toilet so I won't fall, has to bring me the food to bedIn context ↗ | Very severe |
Adverse events
- CBT and psychotherapy“The psychologist told me to "push through discomfort" and I did and I got much much worse.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I profusely sweat every time I try to get up from my bed to pee ... sometimes I pass out on the way to the toilet
In context ↗ - Breathlessness
I can barely catch my air
In context ↗ - Muscle weakness
often hold me up in the toilet so I won't fall
In context ↗ - Post-exertional malaise
I did and I got much much worse
In context ↗