Long COVID
Moderate → no benefit
Long COVID for over five years, mostly stuck at home, no improvement
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Jul 2025
In their words
- At worst: Moderate
Im mostly stuck at home. ... Cant walk more than 5min
- Now: No benefit
63 months of long covid nightmare with neuropathy, cramps, bradychardia, PEM, headaches, gallbladder pain etc.
In context ↗ - Began after: COVID
Fast forward from to 2020 post covid and Im mostly stuck at home.
In context ↗
Read from 9 of their posts and comments; links to the 7 this page draws on
Summary
A Reddit user who caught COVID in 2020 described over five years of long COVID: PEM after 10 minutes of walking, neuropathy, cramps, bradycardia, headaches and gallbladder pain, with prediabetes and sleep apnoea. Mostly stuck at home and working from home, they could walk under five minutes. Metformin gave nightly leg cramps, Valtrex and LDN did not help, and they had not recovered.
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What they tried
Also tried
Their words about each treatment
- low carb diet · Helped
I eat low carb diet with vegetables and lean meat like chicken. ... lower carb diet gives me less legcramps
- swimming every day · Worse
I did try swimming every day but I had to give it up cause of pem.
In context ↗ - metformin · Worse
I started to take metformin but I have leg cramps every night which prevent me from sleeping
In context ↗ - cpap · Worse
I dont tolerate cpap at all
In context ↗ - night guard · Not said
Im treating my obstructive sleep apnea with night guard.
In context ↗ - Energy management · Not said
Energy management. Yeah Im forced to do this.
In context ↗ - Valtrex · No change
I tried Valtrex and it didnt help me.
In context ↗ - LDN · No change
You can get LDN easily from Dickson pharmacy. ... It didn't work for me.
In context ↗ - weed · Helped
My best moments are when In stoned.. but I dont allow myself to smoke very often
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | long COVID after COVID-19 infection; mostly stuck at homeFast forward from to 2020 post covid and Im mostly stuck at home.In context ↗ | Moderate |
| 2024-11-18 | could walk under five minutes; heart and liver damage; no recovery in sightCant walk more than 5min, cant eat any fast carbs cause of pre diabetes and leg cramps.In context ↗ | Moderate |
Adverse events
- Metformin“I started to take metformin but I have leg cramps every night which prevent me from sleeping” In context ↗ Side effects
- CPAP and sleep apnoea treatment“I dont tolerate cpap at all” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Even 10 minutes walk gives me serious PEM.
In context ↗ - Pain & fibromyalgia
I have leg cramps every night which prevent me from sleeping
In context ↗