Long COVID
Severe → somewhat betterIll 3 years before improving or writing
Homebound with long COVID on oxygen, now somewhat better as energy slowly rises
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Feb 2025
In their words
- Condition: Long COVID
My Covid fight started this month 3 years ago.
In context ↗ - At worst: Severe
I was on Oxygen and medically homebound through May 2022.
In context ↗ - Now: Somewhat better
I had zero spoons daily after my hospital stay. Eventually I increased to 1 and then 2. I’m hoping this year I can have 3 spoons.
In context ↗ - Began after: COVID
My Covid fight started this month 3 years ago.
In context ↗
Summary
Puffin 92266 became ill with COVID-19 in February 2022 and was on oxygen and medically homebound through May 2022, with zero energy after a hospital stay. Energy slowly rose from no spoons a day to two, a bald spot filled in by August 2024 and their mind-body connection returned that December. A third COVID infection in February 2025 brought rough respiratory symptoms and low mood.
Ask Miruvor AI
What they tried
Their words about each treatment
- Oxygen · Not said
I was on Oxygen and medically homebound through May 2022.
In context ↗ - Corticosteroid pulses · Not said
I just popped my 6th dose of 20mg Prednisone but it’s not controlling it. It is helping my heart rate and BP shoot up too high.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2022 | COVID-19 onset; on oxygen and medically homebound through May, zero energy after hospital stayMy Covid fight started this month 3 years ago. I was on Oxygen and medically homebound through May 2022.In context ↗ | Severe |
| August 2024 | last bald spot filled in; energy gradually up from no spoons to twoIn August my last bald spot filled in and in December I felt my mind-body connection had returnedIn context ↗ | Mild |
| December 2024 | mind-body connection returned; up to two spoons a dayEventually I increased to 1 and then 2.In context ↗ | Mild |
| 2025-02-09 | crash from a current respiratory infectionI’m hoping despite this setback from whatever my current respiratory infection is, I’ll still see that progress in my energy once I kick this.In context ↗ | Moderate |
| 2025-02-11 | third COVID infection with rough respiratory symptoms and low mood; prednisone not controlling itI just had a positive Covid test. This is my 3rd time infected.In context ↗ | Moderate |
Adverse events
- Corticosteroid pulses“I just popped my 6th dose of 20mg Prednisone but it’s not controlling it. It is helping my heart rate and BP shoot up too high.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Hair loss
In August my last bald spot filled in
In context ↗ - Heart symptoms & palpitations
The 2nd time was only fevers and tachycardia.
In context ↗ - Breathlessness
My respiratory is really rough.
In context ↗ - Anxiety & low mood
today I’m in a low mood because I just had a positive Covid test
In context ↗