Long COVID with chest pain and GI problems, somewhat better with a treatment cocktail
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Jul 2025
In their words
- Condition: Long COVID
Going on 3 years of a brutal case of long covid
In context ↗ - At worst: Severe
felt like a broken, pointless human for being bedridden all day
In context ↗ - Now: Somewhat better
I’m starting to see glimmers of who I used to be
In context ↗ - Began after: COVID
not getting sick for 3 years since my covid infection
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Trail 49897 has had long COVID for about three years, with chest pain, GI problems and a six-month stretch when symptoms were so bad they considered whether life was worth living. A cocktail of extended-release pyridostigmine, ivabradine, LDN and digestive enzymes, plus a routine and work on mental health, brought slow glimmers of their old self. A concussion set them back badly, and three months later they were only slowly returning to their long-COVID baseline.
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What they tried
What they credit
Also tried
Their words about each treatment
- psyllium fiber · Worse
I've tried multiple times over the years, at varying ramp-ups ... and I always feel off, bloaty, or just plain worse than before.
In context ↗ - oatmeal · Helped
a warm bowl of oatmeal (or cold cereal with oat milk) in the morning daily does wonders. It's helped me maintain a decent fiber intake without all the side effects
In context ↗ - niaCEL · Worse
I have a mild intolerance to niaCEL
In context ↗ - extended-release pyridostigmien · Helped
I finally have a good cocktail of meds that includes extended-release pyridostigmien, ivabradine, LDN, and Panplex 2-Phase digestive enzymes
In context ↗
Approaches: POTS medication
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | long COVID after covid infectionGoing on 3 years of a brutal case of long covidIn context ↗ | Not stated |
| 2022-2023 | six months of severe symptoms, bedridden, suicidal thoughtsmy symptoms got so bad for six months that I was starting to really consider whether or not it was worth being alive anymoreIn context ↗ | Severe |
| 2025-07-11 | good med cocktail and routine, glimmers of old selfI finally have a good cocktail of meds that includes extended-release pyridostigmien, ivabradine, LDN, and Panplex 2-Phase digestive enzymes; I’m starting to see glimmers of who I used to beIn context ↗ | Moderate |
| 2025-04 | set back for months by a concussioneven a mild-moderate concussion recently set me back horribly symptom-wiseIn context ↗ | Severe |
| 2025-07-16 | slowly returning to long-COVID baseline after concussion3 months later, things are slowly getting by back to my LC normal.In context ↗ | Moderate |
Adverse events
- Psyllium husk (Metamucil)“I always feel off, bloaty, or just plain worse than before.” In context ↗ Gut side effects
- NAD+ boosters (NMN, nicotinamide riboside, NADH, ATP)“I have a mild intolerance to niaCEL” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Heart symptoms & palpitations
the first emergency room visits for chest pain
In context ↗ - Gut problems
I was somehow puking my guts out and going to the bathroom at the same time because of the GI issues
In context ↗ - Anxiety & low mood
I was starting to really consider whether or not it was worth being alive anymore
In context ↗
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