ME/CFS
Severe → no benefit
CFS brain fog and sitting up too exhausting to play piano; symptoms returned after steroids
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Oct 2023
In their words
- Condition: ME/CFS
This may have to do with the autoimmune aspect of ME/CFS.
In context ↗ - At worst: Severe
getting out of bed to play piano and sitting upright is like… SO much for me too these days
In context ↗ - Now: No benefit
Of course after a while my CFS symptoms returned
In context ↗
Summary
A person with CFS described in late 2023 that brain fog made sight-reading sheet music nearly impossible and sitting upright too exhausting for playing piano. A prescription of methylprednisolone for a cough once gave a brief break from their CFS symptoms and cleared their psoriasis patches, before their CFS symptoms returned. They used a waist trainer and shoulder posture corrector to help them sit up.
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What they tried
Also tried
waist trainer and shoulder posture corrector· Helpedmethylprednisolone· Helped · wore off
Their words about each treatment
- waist trainer and shoulder posture corrector · Helped
Those two things together kinda do the sitting-up for me.
In context ↗ - methylprednisolone · Helped
I had a brief break from my CFS symptoms and the few patches of psoriasis I had completely cleared
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | ME/CFS, onset not describedmy CFS symptomsIn context ↗ | Not stated | |
| one time | brief break from CFS symptoms after methylprednisolone for a coughwas prescribed methylprednisolone, and I had a brief break from my CFS symptoms and the few patches of psoriasis I had completely clearedIn context ↗ | Not stated | Corticosteroid pulses |
| after a while | CFS symptoms returnedOf course after a while my CFS symptoms returnedIn context ↗ | Severe | |
| 2023-10-16 | in bed, brain fog, sitting upright too muchAlso getting out of bed to play piano and sitting upright is like… SO much for me too these days.In context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Brain fog
I find that sight reading sheet music is nearly impossible with this brain fog.
In context ↗