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Long COVID Severe → recoveredIll 14 months before improving or writingNeeds ongoing treatment

Long COVID for 14 months, much of it in bed, now recovered after high-dose B12 and iron

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
14 months
Last post
Jun 2022
In their words
  • Condition: Long COVIDI am proof I cured my long covid after 14 months with vitamin b12. In context ↗
  • At worst: SevereI need to recondition my body from laying in bed for 14 months In context ↗
  • Now: RecoveredI am back to my old self. In context ↗
  • Began after: COVIDhad a severe deficiency from covid
Read from 12 of their posts and comments; links to the 5 this page draws on

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Summary

They had long COVID for 14 months, much of it in bed, with crippling fatigue and brain fog, sensitivity to noise and bright light, and suicidal thoughts. A COVID vaccination made the long covid much worse and left them sleepless for six days. They credit high-dose B12, later combined with iron, for a rapid return to their old self within days, and reported still being well about two weeks later.

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Asking aboutGrove 91873’s story

What they tried

Also tried

Their words about each treatment
  • vitamin b12 · Helped a lotI am proof I cured my long covid after 14 months with vitamin b12. In context ↗
  • iron supplements · HelpedAlso I took iron supplements for 3 week in combo with the b12. In context ↗
  • betaine · HelpedI also took betaine about month back and now feeling the benefits. In context ↗

Approaches: Supplements

Their path

Very severeSevereModerateMildNear normalRecovered14 mo14.5 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 14 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
onsetlong covid after a COVID-19 infectionI cured my long covid after 14 months with vitamin b12 In context ↗Not stated
—in bed for most of 14 months of long covidI need to recondition my body from laying in bed for 14 months. In context ↗Severe
—crashed after a COVID vaccination; six nights without sleepThe symptoms flaired so much and I was in bed to the point I was too fatigued and brain fogged to sleep. In context ↗Severe
2022-05-28back to pre-covid self within days of high-dose B12It happened rather fast and in about 4 days I was back to precovid. In context ↗Near normalVitamin B12
2022-06-07back to old self on B12 and ironNo more of the crippling brain fog and fatigue. I was free. In context ↗Recovered

Adverse events

  • “I can attest that it made the long covid worse for me. ... The symptoms flaired so much and I was in bed” In context ↗ Made symptoms worse
  • “It was miserable and one of the times I wanted to take my life.” In context ↗ Suicidal thoughts or attempt
  • “too fatigued and brain fogged to sleep. I didn’t sleep for 6 days.” In context ↗ Insomnia from treatment

Symptoms mentioned

Their words about their symptoms
  • Brain fogThe fatigue and brain fog is crippling. In context ↗
  • Anxiety & low moodI almost took my life several times thinking I would not get better. In context ↗
  • Light & noise sensitivityI could not do that due to the noise and bright lights would make my symptoms worse. In context ↗
  • Sleep problemsI was in bed to the point I was too fatigued and brain fogged to sleep. In context ↗

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