ME/CFS
Outcome unclear
Moderate ME/CFS with severe days; medication helpful, massage worth the exhaustion
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- May 2023
In their words
- At worst: Moderate
I would say I am moderate with some severe days sprinkled here and there. I can get out of bed most days 👍🏼
In context ↗
Summary
Sparrow 95590 wrote on r/cfs that they had CFS and fibromyalgia, describing themselves as moderate with some severe days sprinkled in and able to get out of bed most days. A medication was very helpful for them, though it caused drowsiness and they had to adjust the dose. Massage therapy left them exhausted, but once that passed they felt wonderful for a few days, which made it worth it.
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What they tried
Also tried
Their words about each treatment
- gabapentin · Helped
I’m on it and it has been very helpful. It does cause drowsiness for me though so I had to adjust my dose
In context ↗ - massage therapy · Helped
Yes I am exhausted after but once it passes I feel wonderful for a few days which makes it worth it for me.
In context ↗
Adverse events
- Gabapentin (Neurontin)“It does cause drowsiness for me though so I had to adjust my dose, otherwise I would sleep all day.” In context ↗ Side effects
- Massage“Yes I am exhausted after but once it passes I feel wonderful for a few days” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I have fibromyalgia also
In context ↗