ME/CFS
Outcome unclear
ME/CFS with day-to-day energy and dizziness; gabapentin for pain, creatine seemed to help
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
prior to my ME diagnosis
In context ↗ - At worst: Mild
When I'm having a good energy day, I can sit up and play more mentally active games
In context ↗
Read from 4 of their posts and comments; links to the 4 this page draws on
Summary
In r/cfs, a user with an ME/CFS diagnosis described energy that varied by day: on good days they sat up to play PC games, on mid days they sat back with a story game, and on low days they could not game. A medication prescribed for TMJ before diagnosis worsened dizziness and orthostatic intolerance without helping pain; gabapentin worked for pain. Creatine 20 g seemed to help and quitting caffeine made no difference.
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What they tried
Also tried
Their words about each treatment
- amitriptyline · Worse
I was prescribed it for TMJ (prior to my ME diagnosis) and it made my dizziness and OI worse and personally it didn't help with pain
In context ↗ - gabapentin · Helped
Then went on gabapentin which worked
In context ↗ - fluoxetine · Not said
am already on fluoxetine for anti-depressant
In context ↗ - creatine · Helped
Yes 20g is broadly what is recommended for the fatigue-busting effects, which is what I take (which seems to help?)
In context ↗ - caffeine · No change
didn't make a difference so picked it back up as I enjoy it
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME/CFS, diagnosed after amitriptyline was given for TMJI was prescribed it for TMJ (prior to my ME diagnosis)In context ↗ | Not stated |
| 2026-08-19 | energy varies day to day; games lying back with a controller on mid days, not at all on low daysLow energy days, I can't game.In context ↗ | Mild |
Adverse events
- Amitriptyline (Elavil)“I was prescribed it for TMJ (prior to my ME diagnosis) and it made my dizziness and OI worse” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
it made my dizziness and OI worse
In context ↗ - Pain & fibromyalgia
it didn't help with pain
In context ↗