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Long COVID Moderate → near normalIll 13 months before improving or writing

Breathlessness and fatigue with long COVID, now near normal with inhalers and Pfizer dose

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
13 months
Last post
Jul 2021
In their words
  • Condition: Long COVIDapparently that was a long COVID symptom I had and wasn't me being super out of shape In context ↗
  • At worst: ModerateI had a severe shortness of breath ... With that came GI issues, extreme fatigue, headaches, and a loss of smell. In context ↗
  • Now: Near normalSo back to my version of normal. In context ↗
  • Began after: COVIDI got COVID back in March 2020.
Read from 6 of their posts and comments; links to the 5 this page draws on

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Summary

Wave 72844 caught COVID in March 2020 and was left with severe breathlessness, GI issues, extreme fatigue, headaches and lost smell, relapsing whenever they tried to be active. Asthma inhalers from a specialist began a slow four-month recovery, and the first Pfizer dose in March 2021 ended their breathlessness; they felt 99.5% back to their old self. By July 2021 their GI issues and migraines were gone and their inhaler dose was halved.

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What they tried

Their words about each treatment
  • dexamethasone and prednisone · Not saidI got dexamethasone and more prednisone and antibiotics In context ↗
  • time · HelpedI feel like I started slowly improving 6 months after getting COVID In context ↗
  • inhaled corticosteroid (daily asthma medication) · HelpedHe reduced my inhaled corticosteroid dosage from 200mg to 100mg and I have felt fine. In context ↗
  • albuterol rescue inhaler · Helpedmy rescue inhaler has been very helpful, especially if I am going to do more intense activities In context ↗
  • allergy shots · Helpedstarting allergy shots to address whatever inflammatory effects my pre-existing allergies were causing In context ↗
  • high-dose curcumin supplement · HelpedI took/take 1000mg of curcumin supplements twice a day. In context ↗
  • NAC · HelpedNAC as a supplement which helped my SOB and chest tightness In context ↗
  • Pfizer vaccine · Helped a lotwhat seemed to really change things for me was getting the first dose of the Pfizer vaccine about two weeks ago In context ↗

Approaches: Antihistamines & MCAS · Radical rest · Supplements · Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
March 2020COVID-19 with severe breathlessness, throat closing, GI issues, fatigue, headache, lost smellI got COVID back in March 2020. I had a severe shortness of breath and the worst part was that it felt like my throat was closing up In context ↗Moderate
two weeks into illnessrelapse with breathlessness and fever, back in urgent caretwo weeks later I was back in urgent care with SOB and a fever In context ↗Moderate
about 6 months in (around September 2020)started slowly improving; asthma specialist prescribed daily medications and four months of steady improvement followedI ended up going to an asthma specialist and got prescribed several medications. That was when I was able to start recovering. In context ↗Mild
late March 2021first Pfizer dose; no more breathlessness episodes and heart rate fellwhat seemed to really change things for me was getting the first dose of the Pfizer vaccine about two weeks ago. I haven't had a shortness of breath episode since and my heart rate has gone down In context ↗Near normalCOVID vaccination as treatment
2021-07-12breathing better than a normal person without asthma on half the steroid dose; GI issues and migraines goneSo back to my version of normal. In context ↗Near normalCOVID vaccination as treatment

Symptoms mentioned

Their words about their symptoms
  • BreathlessnessI had a severe shortness of breath In context ↗
  • Gut problemsWith that came GI issues In context ↗
  • Headaches & migrainethe migraines I started getting after the acute phase of Covid had diminished dramatically after the second shot In context ↗
  • Loss of smell or tastea loss of smell In context ↗
  • Post-exertional malaiseany time I tried to be remotely active I would relapse and all the symptoms would come back In context ↗
  • Heart symptoms & palpitationsmy heart rate has gone down - apparently that was a long COVID symptom I had In context ↗
  • Anxiety & low moodI am still afraid of exercising because of what that did to me after I got sick In context ↗
  • Mast cell (MCAS) & allergiesI would love to not get wheezy when I smell cut grass, but that was an issue before Covid. In context ↗
  • Temperature regulationI was back in urgent care with SOB and a fever In context ↗

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