ME/CFS
Outcome unclear
ME/CFS with nerve pain, headaches and vomiting; tried daith piercing and Lyrica
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Oct 2017
In their words
- Condition: ME/CFS
Paresthesias, headaches/migraines (greatly reduced by getting my daith pierced!), random vomiting, especially just after waking, thats usually followed by some symptom relief ... nerve pain.
In context ↗
Summary
A person who reported paresthesias and nerve pain, headaches and migraines, and random vomiting, often just after waking. Adderall, Adderall ER and Provigil worked only briefly for them. A daith piercing greatly reduced their migraines, and Lyrica helped their nerve pain a lot, with a dramatic decrease after about a month; they switched to the cheaper gabapentin. How limited they were day to day is not described.
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What they tried
Also tried
Their words about each treatment
- Adderall, Adderall ER · Helped
I tried Adderall, Adderall ER, and provigil. Worked for a little bit, but not long term, so I stopped taking them.
In context ↗ - daith piercing · Helped a lot
headaches/migraines (greatly reduced by getting my daith pierced!)
In context ↗ - Lyrica · Helped
I took Lyrica for nerve pain (I switched to gabapentin because it was cheaper) and I noticed that it helped a lot.
In context ↗ - gabapentin · Not said
I switched to gabapentin because it was cheaper
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| — | onset of CFS symptomsParesthesias, headaches/migraines ... nerve painIn context ↗ | |
| 2017-06-19 | stimulants helped briefly, then stoppedWorked for a little bit, but not long term, so I stopped taking themIn context ↗ | Amphetamine salts (Adderall) |
| 2017-06-23 | daith piercing greatly reduced migrainesheadaches/migraines (greatly reduced by getting my daith pierced!)In context ↗ | |
| 2017-10-02 | nerve pain greatly reduced on Lyricaabout a month before I noticed a dramatic decrease in my nerve painIn context ↗ |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
headaches/migraines (greatly reduced by getting my daith pierced!)
In context ↗ - Gut problems
random vomiting, especially just after waking
In context ↗ - Neuropathy & tingling
Paresthesias ... nerve pain
In context ↗