Long COVID with few functional hours, now somewhat better with gentle walks and rest
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Feb 2026
In their words
- Condition: Long COVID
I have had long covid for 3+ years.
In context ↗ - At worst: Mild
I sort of ping pong between a few hours or days of being functional, followed by hours or days of just feeling awful.
In context ↗ - Now: Somewhat better
I sloooowly made progress the first 18-24 months, but now I feel that I've plateaued
In context ↗ - Began after: COVID
I got covid 2+ years ago
In context ↗
Summary
Pelican 79867 got long COVID from a COVID-19 infection around 2022 and slowly improved over 18-24 months before plateauing into a few functional hours or days followed by hours or days of feeling awful. A September 2024 COVID vaccine, two days after a dTAP shot, left aching legs, fatigue, poor sleep and a racing heart worse than their baseline. By 2026 aching legs, nausea, sleep problems and fatigue persisted, eased by gentle walks, CBD gel, Advil and rest days.
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What they tried
Also tried
Their words about each treatment
- Covid vaccine / boosters · Worse
my long covid symptoms (achey legs, fatigue, poor sleep, racing heart) have gotten worse
In context ↗ - Advil · Helped
I usually end up taking Advil at least once a day
In context ↗ - Tylenol · No change
I've tried Tylenol, but that doesn't touch the pain.
In context ↗ - going on a walk and moving more · Helped
going on walk and moving more actually helps
In context ↗ - calf stretches · Not said
Sometimes I do calf stretches
In context ↗ - muscle gel with CBD · Not said
rub down my legs with a muscle gel that has CBD
In context ↗ - rest day · Not said
sometimes I just call an audible and do a rest day if I feel like I'm a PEM crash
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 18 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2022 | COVID-19 infection, long COVID beginsI got covid 2+ years agoIn context ↗ | Not stated |
| after 18-24 months | slow progress, then plateau with good and awful days alternatingI sloooowly made progress the first 18-24 months, but now I feel that I've plateauedIn context ↗ | Mild |
| September 2024 | worse after COVID vaccine given two days after dTAPmy long covid symptoms (achey legs, fatigue, poor sleep, racing heart) have gotten worse - it's been almost three weeks now and I'm still not back to my baselineIn context ↗ | Mild |
| 2026-02-02 | still ill with aching legs, nausea, sleep issues and bouts of fatigue; manages with gentle walks and rest daysThe achy legs are probably the worst of my ongoing symptoms but I also have nausea and sleep issues and bouts of fatigue.In context ↗ | Mild |
Adverse events
- COVID vaccination as treatment“just mild fever and aches, nausea” In context ↗ Side effects
- COVID vaccination as treatment“my long covid symptoms (achey legs, fatigue, poor sleep, racing heart) have gotten worse - it's been almost three weeks now and I'm still not back to my baseline” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
The achy legs are probably the worst of my ongoing symptoms
In context ↗ - Gut problems
I also have nausea and sleep issues and bouts of fatigue
In context ↗ - Post-exertional malaise
sometimes I just call an audible and do a rest day if I feel like I'm a PEM crash
In context ↗ - Heart symptoms & palpitations
my long covid symptoms (achey legs, fatigue, poor sleep, racing heart) have gotten worse
In context ↗ - Temperature regulation
just mild fever and aches, nausea
In context ↗