Bedridden three months with ME/CFS, improved then relapsed after pushing at work
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 18 months
- Last post
- Oct 2026
In their words
- Condition: ME/CFS
I’ve battled with CFS for about three years now
In context ↗ - At worst: Severe
Later that year I was bedridden for three months - only being able to leave bed for the bare minimum.
In context ↗ - Now: Relapsed
Since returning however, I lost sight of my fatigue ... putting myself in a poor functioning level once again
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
A 23-year-old, about three years into CFS in early 2023, was bedridden for three months in 2021. Gradually returning to work at a friend's pub with supportive friends brought dramatic improvement, and they backpacked around Europe for four months with breaks. Back home they worked themselves into a relapse; by early 2024 brain fog was a major symptom at work, and by 2026 pushing through the afternoon caused crashes, managed by resting.
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What they tried
Also tried
Their words about each treatment
- beer · Helped
So far I’ve only found having a beer or THC to be somewhat effective
In context ↗ - cold showers · No change
I’ve tried cold showers, sunlight, food, exercise. ... No silver bullet.
In context ↗ - Provigil (Modafinil) · Helped
It’s good but it’s fake energy that you will pay the debt for in the days afterwards.
In context ↗ - laying low and resting during this period · Helped
if I lay low and rest during this period I can manage the rest of the day
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 15 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | CFS onsetI’ve battled with CFS for about three years now, I’m 23 years old.In context ↗ | Not stated |
| 2021 | bedridden for three monthsLater that year I was bedridden for three months - only being able to leave bed for the bare minimum.In context ↗ | Severe |
| 2022 | back to flexible pub work, improved dramatically, then travelled EuropeI was able to slowly get back to work with no judgement and my progress was fantastic.In context ↗ | Mild |
| 2023-03 | relapse after working themselves to the ground following travelWorking myself to the ground and now putting myself in a poor functioning level once again.In context ↗ | Mild |
| 2026-10-21 | still ill, manages by resting in the afternoonif I lay low and rest during this period I can manage the rest of the day.In context ↗ | Mild |
Adverse events
- Modafinil / armodafinil“It’s good but it’s fake energy that you will pay the debt for in the days afterwards.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
One of my big symptoms is brain fog, it can make work at times tricky.
In context ↗ - Post-exertional malaise
if I push through this period I crash
In context ↗