Severe ME/CFS, no benefit after two years of Perrin technique
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 12.5 years
- Last post
- May 2025
In their words
- Condition: ME/CFS
I've had this godforsaken illness since the age of 12 and have gradually gotten worse since (I'm now in my 20s).
In context ↗ - At worst: Severe
I'm still severe and every time I leave the house for treatment, I risk having a flare-up
In context ↗ - Now: No benefit
I've had this godforsaken illness since the age of 12 and have gradually gotten worse since (I'm now in my 20s).
In context ↗
Summary
They had had ME/CFS since the age of 12, growing gradually worse into their twenties, and described themselves as still severe, risking a flare-up every time they left the house. After years of unsuccessful treatments they started the Perrin technique, and after two years of sessions reported only minor relief of headaches and brain fog, with their fatigue barely touched. Travelling to appointments worsened their fatigue and they could barely afford it.
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What they tried
Their words about each treatment
- Perrin technique · Helped
I've been seeing a professional practitioner for 2 years now and whilst I feel it's helped reduce some of my symptoms, such as my headaches and brain fog, it's done very little for the fatigue.
In context ↗ - cranial osteopathy · Helped
The perrin, particularly the cranial osteopathy the practitioner does on me, relieves these symptoms significantly. But it's a trade-off because physically getting to the appointments makes my fatigue worse.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| age 12 | ME/CFS began at age 12I've had this godforsaken illness since the age of 12 and have gradually gotten worse since (I'm now in my 20s).In context ↗ | Not stated |
| 2025-05-21 | two years of Perrin technique gave minor relief of headaches and brain fog but not fatigue; still severewhilst I feel it's helped reduce some of my symptoms, such as my headaches and brain fogIn context ↗ | Severe |
| 2025-05-22 | still severe; travel to Perrin appointments worsens fatigueit's a trade-off because physically getting to the appointments makes my fatigue worseIn context ↗ | Severe |
Symptoms mentioned
Their words about their symptoms
- Headaches & migraine
I feel like there's pressure behind my eyes and like my skull is pulsing painfully
In context ↗ - Brain fog
it's helped reduce some of my symptoms, such as my headaches and brain fog
In context ↗ - Post-exertional malaise
every time I leave the house for treatment, I risk having a flare-up that'll lead to fatal deterioration
In context ↗