Long COVID
Severe → no benefit
Long COVID pain and exhaustion, mostly stuck on couch, no improvement from what they tried
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: Long COVID
getting my long covid diagnosis
In context ↗ - At worst: Severe
I’ve been stuck on the couch re-watching the series House ... Days I can take a bath or a shower are good days!
- Now: No benefit
I’m in a rough spot myself right now ... Today was difficult because I was in so much pain and so exhausted
- Began after: COVID
It was a huge blow a few months ago getting my long covid diagnosis
- Says they never had: Loss of smell or taste
Apparently some patients are getting their sense of smell back too, but I never lost mine.
Summary
Stream 73953 had chronic Lyme for decades and once nearly died of it, improving only after finding the right doctor 12 years in, at a cost of about $100,000 out of pocket. After a long COVID diagnosis in 2026 they were mostly stuck on the couch in pain and exhaustion. Nicotine patches, bromelain, nattokinase and dandelion root were tried; their spike proteins fell 5,000 in a month, but they used the patches for only about a week amid conflicting blood sugar advice.
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What they tried
Also tried
nicotine patches· HelpedBromelain· Helpednattokinase· Helpeddandelion root· Helpedone of the meds· Worse
Their words about each treatment
- one of the meds · Worse
I was doing so much better before I started treatment ... one of the meds (which seems to make me worse)
In context ↗ - nicotine patches · Helped
Nicotine is supposed to work… 1 patch a day for a week. My spike proteins are down 5,000 in a month, so something must be working
In context ↗ - Bromelain · Helped
something must be working out of the nicotine, Bromelain, nattokinase (which needs to be taken on an empty stomach,) and dandelion root. I wish I knew which one
In context ↗ - nattokinase · Helped
something must be working out of the nicotine, Bromelain, nattokinase (which needs to be taken on an empty stomach,) and dandelion root
In context ↗ - dandelion root · Helped
something must be working out of the nicotine, Bromelain, nattokinase ... and dandelion root. I wish I knew which one
In context ↗
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| years ago | on her deathbed from LymeI know the kids have seen me trust in God even when I was on my deathbed at one pointIn context ↗ |
| 12 years into Lyme treatment | found the right doctor and began improvingI finally started improving once I found the right doctor (12 years in!)In context ↗ |
| before starting long COVID treatment | doing much better before treatment startedIn my case I was doing so much better before I started treatment.In context ↗ |
| 2026-04-25 | rough spot, stuck on the couch, one med seems to make her worseI’m in a rough spot myself right now ... I’ve been stuck on the couch re-watching the series HouseIn context ↗ |
| 2026-06-14 | in pain and exhausted, showering is a winToday was difficult because I was in so much pain and so exhausted, but maybe tomorrow will be better.In context ↗ |
Adverse events
- “I sure hope things get a little better when I get to finish one of the meds (which seems to make me worse) at the end of this month.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
sometimes I’m just in so much pain, so frustrated, so exhausted, and so grumpy
In context ↗