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Long COVID Severe → recoveredIll 8 months before improving or writing

In bed most of eight months with long COVID, now recovered with time

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
8 months
Last post
Mar 2021
In their words
  • Condition: Long COVIDso yeah I'm a recovered covid long hauler. In context ↗
  • At worst: SevereIn these 8 months I spend most of the time in the bed. Even the walk to the bathroom was an extremely daunting task. In context ↗
  • Now: RecoveredI have been symptom free for > 3 month now! ... But now I'm back to normal in all respects
  • Began after: COVIDdespite having tested positive for covid
Read from 13 of their posts and comments; links to the 6 this page draws on

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Summary

Long COVID began in April 2020 with bloody diarrhoea, cough, crippling fatigue and barely functioning cognition; they spent most of the next eight months in bed. Brain fog cleared by the end of July and the rest faded four months later. By March 2021 they had been symptom free for over three months and were back to all their previous activities, with only a slightly faster pulse on exertion. They credited time rather than the treatments they tried.

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What they tried

Their words about each treatment
  • some meds ( mainly to stop the bleeding ) · No changeI was put on some meds ( mainly to stop the bleeding ) ... Nothing helped as much as I hoped though. In context ↗
  • vit c · No changesome other immunity boosters ( vit c and a bunch of minerals) In context ↗
  • anti-allergic syrup · Helpedthere was an anti-allergic syrup that would relieve the respiratory symptoms just slightly and temporarily In context ↗
  • inhaler · WorseAt some pointed I tried out an inhaler ( I got it without prescription) but It ended up giving me headache and inexplicably exacerbating my symptoms. In context ↗
  • low histamine diet · Not saidI consumed mostly low histamine diet. In context ↗
  • exercise · Not saidI exercised every so often to evaluate any improvement of my condition In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
April 2020COVID-19 with diarrhoea, cough, fatigue and cognitive problemsOn day 1 everything went upside down. In context ↗Severe
April–December 2020mostly in bed for eight monthsIn these 8 months I spend most of the time in the bed. In context ↗Severe
July 2020brain fog cleared to normal cognitionby the end of July my cognitive skills were back to normal In context ↗Mild
November 2020remaining symptoms resolvedWithin 4 months of the abatement of the brain fog the rest went away In context ↗Recovered
March 2021symptom free over three months, back to previous activitiesI have been symptom free for > 3 month now! In context ↗Recovered

Adverse events

  • “At some pointed I tried out an inhaler ( I got it without prescription) but It ended up giving me headache and inexplicably exacerbating my symptoms.” In context ↗ Made symptoms worse

Symptoms mentioned

Their words about their symptoms
  • Gut problemsdiarrhea with profuse blood in the beginning In context ↗
  • Brain fogbarely functioning cognition In context ↗
  • POTS & dysautonomiaI would come within an inch of passing out while showering! In context ↗
  • Heart symptoms & palpitationsa pulse that's a little bit faster than ideal on exertion In context ↗

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