ME/CFS
Moderate → no benefit
Exhausted since high school with ME/CFS, still brain fog and days in bed; medicines no help
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- Not stated
- Last post
- Aug 2026
In their words
- Condition: ME/CFS
diagnosed me with chronic fatigue syndrome
In context ↗ - At worst: Moderate
Some days I feel like all I can do is lay in bed and when I get up, I have absolutely zero energy.
In context ↗ - Now: No benefit
Today, I feel like I have nothing in me and I’m fighting with everything I have not to lay back down.
In context ↗ - Began after: nothing they could name
Since I was a teenager in high school, no matter how much I slept, I was always brutally exhausted.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Harbor 26226 has felt brutally exhausted since high school, falling asleep in class no matter how much they slept. Two sleep studies found REM sleep within about seven minutes; a narcolepsy medicine did not help, and a doctor diagnosed chronic fatigue syndrome, blaming stress, anxiety and depression. They report brain fog, poor memory and days when they can only lie in bed, while raising two children. Vybriid for anxiety and depression does little.
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What they tried
Also tried
Vybriid· No changethe medicine they said is in the "date rape drug"· Worse
Their words about each treatment
- the medicine they said is in the "date rape drug" · Worse
With that medicine, I would often wake up while on it and feel extremely funky, and I hated it. And it didn’t help.
In context ↗ - Vybriid · No change
I do take Vybriid for anxiety and depression, but it doesn’t do much for me.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| — | exhaustion began in high schoolSince I was a teenager in high school, no matter how much I slept, I was always brutally exhausted.In context ↗ | Mild |
| 2026-08-15 | still exhausted, some days only able to lie in bedToday, I feel like I have nothing in me and I’m fighting with everything I have not to lay back down.In context ↗ | Moderate |
Adverse events
- “I would often wake up while on it and feel extremely funky, and I hated it. And it didn’t help.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
no matter how much I slept, I was always brutally exhausted
In context ↗ - Brain fog
I also suffer from brain fog, and my memory sucks.
In context ↗ - Anxiety & low mood
still struggle from stress, anxiety, and depression
In context ↗