Too weak to talk, walk or stay awake with ME/CFS, now somewhat better
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10 years
- Last post
- Jun 2025
In their words
- Condition: ME/CFS
Not LC, but ME/CFS.
In context ↗ - At worst: Severe
I couldn’t barely talk, walk, or stay awake
In context ↗ - Now: Somewhat better
I would describe myself as mild on my best days and moderate usually.
In context ↗ - Began after: another virus
I got a serious case of the flu in February 2015. I never recovered.
Read from 7 of their posts and comments; links to the 5 this page draws on
Summary
Dew 50871 fell ill with a serious flu in February 2015 and never recovered, at first too weak to talk, walk or stay awake. Over the following years they improved greatly without crediting a specific treatment, and by late 2024 described themself as mild on their best days and moderate usually. They are often having to take to their bed, though they had not been fully bedbound for about four years. They also took gabapentin for pain, which did not help.
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What they tried
Their words about each treatment
- GABA · No change
I was on 2400mg/day for pain management. Didn’t do anything to help my pain
In context ↗ - COVID booster · No change
Got the booster back in November. Didn’t have any side effects, not even a sore arm.
In context ↗ - shingles vaccine · No change
Wait, people had bad reactions? I had none at all.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| February 2015 | serious flu, never recoveredI got a serious case of the flu in February 2015. I never recovered. ... I couldn’t barely talk, walk, or stay awakeIn context ↗ | Severe |
| — | crash during gabapentin trialI was going through a crash at the timeIn context ↗ | Not stated |
| 2024-12-22 | improved by leaps and bounds over the yearsI would describe myself as mild on my best days and moderate usuallyIn context ↗ | Moderate |
| 2025-06-03 | not fully bedbound for about four years, still often takes to bedI haven’t been fully bedbound for about four years nowIn context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I couldn’t barely talk, walk, or stay awake
In context ↗ - Pain & fibromyalgia
Didn’t do anything to help my pain
In context ↗