ME/CFS
No benefitNeeds ongoing treatment
ME/CFS with unrefreshing sleep, tried Sublocade and diazepam without improvement
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Feb 2023
In their words
- Condition: ME/CFS
this combination has been better than anything I’ve ever tried for my ME/FMS
In context ↗ - Now: No benefit
I’m desperately unwell unmedicated so I’ll keep doing this for as long as I get these results.
In context ↗
Summary
A person with ME/CFS and fibromyalgia described sleep that was never refreshing and needing nine to ten hours; with less, their symptoms worsened. They took the opioid-addiction drug Sublocade, which made them feel very well for the first couple of weeks, plus diazepam on difficult days; the combination beat anything else they had tried. They had tried Dexamphetamine and methylphenidate, and in February 2023 said being offered them again felt like flogging a dead horse.
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What they tried
Also tried
Their words about each treatment
- Sublocade · Helped
my addiction treatment medication Sublocade is very helpful for a few weeks at least. The first couple of weeks I feel very well.
In context ↗ - Diazepam · Helped
I also have Diazepam which I take on difficult days, this combination has been better than anything I’ve ever tried for my ME/FMS
In context ↗ - Dex and Ritalin · Not said
Tried both Dex and Ritalin, I was offered them again recently but feels like flogging a dead horse at this stage.
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2022-10-09 | Already ill with ME/CFS; sleep never refreshing, needs at least nine hoursSleep is not refreshing but under 9 and all symptoms are exacerbated.In context ↗ |
| 2023-01-08 | Sublocade gave a few good weeks; diazepam on difficult daysThe first couple of weeks I feel very well.In context ↗ |
| 2023-02-23 | Still unwell; stimulants no longer worth tryingfeels like flogging a dead horse at this stage.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Sleep problems
Sleep is not refreshing but under 9 and all symptoms are exacerbated.
In context ↗ - Pain & fibromyalgia
this combination has been better than anything I’ve ever tried for my ME/FMS
In context ↗