ME/CFS with years of pushing and crashing, improving with rest then relapsing
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- years
- Last post
- Oct 2024
In their words
- Condition: ME/CFS
I have ME and SFN.
In context ↗ - Now: Relapsed
I recovered and crashed again etc.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Valley 90920 has ME/CFS and small fibre neuropathy and, not knowing they had ME, spent years pushing hard and crashing hard, with crashes that left them not conscious or able to talk. They describe repeated cycles of recovering and crashing again, and say rest helps and that people can go from bedbound to mild. No treatment or current level of function is described.
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What they tried
What they credit
Their words about each treatment
- Rest · Helped
Rest helps. People recover from being bedbound to mild. ... Rest more.
In context ↗
Approaches: Pacing
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | Where they were |
|---|---|---|
| — | ME and small fibre neuropathyI have ME and SFN.In context ↗ | Not stated |
| — | pushed hard and crashed hard repeatedlypushing hard and crashing very hard was my "normal" for years. (Crashes were I wasn't conscious / able to talk).In context ↗ | Severe |
| 2024-10-24 | says rest helps and others can improveRest helps. People recover from being bedbound to mild.In context ↗ | Not stated |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
pushing hard and crashing very hard was my "normal" for years
In context ↗ - Neuropathy & tingling
I have ME and SFN.
In context ↗
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