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ME/CFS Outcome unclear

ME/CFS with nerve and muscle pain; an unnamed medication eased pain but had side effects

Condition
ME/CFS
At worst
Not stated
Ill for
Not stated
Last post
May 2024
In their words
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

Plover 40485, who has CFS and ADHD, used Ritalin for both and Seroquel for sleep; duloxetine made their fatigue much worse, so they stopped it. In May 2024 they reported that an unnamed medication eased nerve and muscle pain from 10 to 8 and gave an extra hour of energy a day, with annoying side effects; gabapentin had left them foggy.

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What they tried

Their words about each treatment
  • ritalin · Not saidI use ritalin for ADHD and CFS and take it early enough that it doesn't interfere with sleep In context ↗
  • Seroquel · Not saiduse Seroquel for sleeping In context ↗
  • Duloxetine/Cymbalta · Worsewhen I tried it it just made my fatique way worse so I didn't stay on it In context ↗
  • amitriptyline · Helpedit's great for reducing my pain nerve and muscle form a 10 to an 8 most of the time ... I do feel like it gives me an extra hour of energy in the day In context ↗
  • Gabapentin · Worsethe fogginess of Gabapentin In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—living with CFS and ADHDI use ritalin for ADHD and CFS In context ↗
2024-05-17amitriptyline eased nerve and muscle pain and gave an extra hour of energyI do feel like it gives me an extra hour of energy in the day In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Sleep problemsuse Seroquel for sleeping In context ↗
  • Pain & fibromyalgiagreat for reducing my pain nerve and muscle form a 10 to an 8 most of the time In context ↗

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