Bedbound most of day with long COVID, improved on LDN then relapsed
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 7 months
- Last post
- Aug 2025
In their words
- Condition: Long COVID
Currently on my 7th month of long covid.
In context ↗ - At worst: Severe
Quit working and was bedbound most of the day.
In context ↗ - Now: Relapsed
As i'm getting worse again, i need to try something.
In context ↗ - Began after: COVID
Currently on my 7th month of long covid.
In context ↗
Read from 42 of their posts and comments; links to the 15 this page draws on
Summary
Tide 85177, 22, developed long COVID in late 2023 and was bedbound most of the day after quitting work. Supplements gave about 10%, and low-dose naltrexone lifted them from 30% to 60-70% in three weeks, easing fatigue, brain fog, headache and dizziness. Beta-blockers helped palpitations but caused hair loss, and an LDN shortage left them worse. Nicotine patches helped fatigue but disturbed sleep, and they reported worsening again.
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What they tried
What they credit
Also tried
Their words about each treatment
- metropolol / bisoprolol · Helped
Started with metropolol 2 months ago and it helps me a lot with my heart palpitations and chest pain.
In context ↗ - LDN (low dose nalteroxe) · Helped a lot
it has helped me so much with my fatigue. Felt it already after a week.
In context ↗ - supplements · Helped
Started this on my second month of long covid and it made me feel a bit better. Maybe 10%.
In context ↗ - melatonin · Not said
Then started melatonin to help with that
In context ↗ - NAC · Helped
NAC and especially low dose naltrexone helped me manage it well.
In context ↗ - nicotine patches · Helped
since i've been using them i've been less tired
In context ↗
Approaches: Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2023 | long COVID onsetCurrently on my 7th month of long covid.In context ↗ | Not stated | |
| March 2024 | quit work, bedbound most of the dayQuit working and was bedbound most of the day.In context ↗ | Severe | |
| second month of long covid | lots of supplements gave a small liftStarted this on my second month of long covid and it made me feel a bit better. Maybe 10%.In context ↗ | Severe | |
| February 2024 | palpitations and chest pain much milder on metoprololStarted with metropolol 2 months ago and it helps me a lot with my heart palpitations and chest pain.In context ↗ | Severe | |
| April 2024 | more energy, out with friends, football practice, concertI'm feeling like 60/70% right now and 3 weeks ago it felt like 30%.In context ↗ | Mild | Low-dose naltrexone |
| May 2024 | did too much and crashedFelt better for a while, did too much (not even lot but you get it) and now i'm fked again.In context ↗ | Moderate | |
| September 2024 | LDN stopped abruptly because of a pharmacy shortageAfter being without LDN for 2 months, i realized that it helped me more than i thought.In context ↗ | Moderate | |
| November 2024 | headache gone, can do a little more before crashingHeadache is gone, feels like i can do a tiny bit more before crashing.In context ↗ | Moderate | Low-dose naltrexone |
| March 2025 | two weeks worse than usualI felt quite worse than 'normal' these last 2 weeks.In context ↗ | Moderate | |
| April 2025 | less tired on nicotine patches but waking six times a nightsince i've been using them i've been less tiredIn context ↗ | Mild | Nicotine patches |
| August 2025 | getting worse again, considering stellate ganglion blockAs i'm getting worse again, i need to try something.In context ↗ | Moderate |
Adverse events
- Low-dose naltrexone“First week i did feel pretty bad yes. But i can't be sure that it was because of LDN. I might have done too much that week and got PEM.” In context ↗ Made symptoms worse
- Metoprolol (Lopressor, Toprol)“Experiencing hair loss for a week now and it worries me a lot. I hope it's a side effect from metropolol and not stress” In context ↗ Side effects
- Metoprolol (Lopressor, Toprol), Bisoprolol (Concor)“Gave me hairloss :(” In context ↗ Side effects
- Nicotine patches“I've been using nicotine patches for 3 weeks now. I've started using them as i have extreme fatigue and since i've been using them i've been less tired. Even while i have been sleeping very bad!” In context ↗ Insomnia from treatment
Symptoms mentioned
Their words about their symptoms
- Brain fog
It helped me with my brain fog for sure.
In context ↗ - Heart symptoms & palpitations
I still have them if i slept bad, or did too much.
In context ↗ - Headaches & migraine
Headache is gone
In context ↗ - POTS & dysautonomia
I had severe dizziness. This is basically gone if i don't do too much.
In context ↗ - Sleep problems
I keep waking up like 6 times every night.
In context ↗ - Hair loss
Experiencing hair loss for a week now and it worries me a lot.
In context ↗
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