Miruvor
Sign up
ME/CFS Somewhat better

Chronic fatigue and insane chronic pain with ME/CFS, somewhat better after acupuncture

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
Not stated
Last post
May 2020
In their words
  • Condition: ME/CFSmy main issues were chronic fatigue and insane chronic pain In context ↗
  • Now: Somewhat betterI still have some fatigue but it’s not as bad as pre-acupuncture In context ↗
Read from 1 of their posts and comments; links to the one this page draws on

Request to remove this story

Summary

Orchid 51127 described chronic fatigue with “insane chronic pain” and dry eyes and mouth, diagnosed with early Sjögren’s syndrome from salivary-gland antibodies after many blood tests. Multiple rounds of acupuncture for back pain cleared the back pain, and their fatigue was less than before, though some remained. Lyrica did nothing and they avoided long-term Adderall. They were left untreated for Sjögren’s during lockdown.

Ask Miruvor AI

Asking aboutOrchid 51127’s story

What they tried

Their words about each treatment
  • acupuncture · Helped a lotRight before corona virus lockdown I went through multiple rounds of acupuncture for my back pain and it actually made it go away! In context ↗
  • Lyrica · No changeLyrica didn’t do anything for me In context ↗
  • Adderall · Not saidI didn’t want to be on Adderall long term (for fatigue) In context ↗

Approaches: Alternative therapies

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
—chronic fatigue and severe chronic pain; diagnosed with early Sjögren's syndromemy main issues were chronic fatigue and insane chronic pain In context ↗
2020-05-11fatigue less than before acupuncture; still some fatigueI still have some fatigue but it’s not as bad as pre-acupuncture. In context ↗

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiamy main issues were chronic fatigue and insane chronic pain In context ↗

Ask Miruvor AI

Asking aboutOrchid 51127’s story

Similar stories

  • Bedridden for years with ME/CFS, now housebound and moderate after time and rest

    Somewhat better Glacier 44961 ME/CFS Severe at worstIll 6 years before improving or writing reddit.com Oct 2026

    A person with ME/CFS for six or more years was severe and bedridden for several years, then gradually improved to housebound and moderate. They credited time, rest and harm reduction rather than one treatment. Nicotine patches, microdosed psilocybin, pacing…

  • Housebound with long COVID, now much better and back at work after rest and acupuncture

    Much better Spruce 30711 Long COVID Severe at worstIll 2.5 years before improving or writing reddit.com Oct 2026

    An Australian academic in their forties got long COVID in May 2024 after a third infection: brain fog first, then crippling fatigue that left them housebound and crashing daily for months. Rest, time and treatments including acupuncture greatly improved…

  • Long COVID brain fog, fatigue and POTS, now much better with pacing and compression

    Much better Vale 64877 Long COVID Moderate at worstIll 17 months before improving or writing reddit.com Oct 2026

    A retired Northern California woman got long COVID in Italy in October 2024, with brain fog, fatigue, tinnitus and gut trouble; POTS was diagnosed later. Low-dose naltrexone, bupropion, acupuncture, osteopathy, pacing, salt and compression brought slow…

  • ME/CFS after flu, improved on mould and Lyme protocols then worse after Klonopin taper

    Relapsed Hawk 16074 ME/CFS Moderate at worstIll 23 years before improving or writing reddit.com Oct 2026

    Hawk 16074 got ME/CFS at 48 after a flu and stopped teaching at 54. She slowly improved on Shoemaker mould and Horowitz Lyme protocols, but 14 years of prescribed Klonopin and a one-year taper left her worse. Her adoptive mother's death and a three-week…

A little hope, every Sunday

New recovery stories and data-driven research on ME/CFS and long COVID. Ideas worth considering, and the evidence behind them.

Free · Unsubscribe anytime