ME/CFS
No benefit
ME/CFS with POTS, dysautonomia and brain fog, no relief from meds; Yoga Nidra tried
- Condition
- ME/CFS
- At worst
- Not stated
- Ill for
- Not stated
- Last post
- Jul 2026
In their words
- Now: No benefit
I had quite a few symptoms this week, and while my threat signal did go off, I was able to calm it down in a few hours
In context ↗
Read from 21 of their posts and comments; links to the 16 this page draws on
Summary
Hare 64239 has dysautonomia and POTS, a heart rate jumping from 70 to 130/140 on standing, brain fog and screen sensitivity. Most medications made them feel worse: low-dose propranolol caused severe dizziness, clonazepam left them disconnected, a Prozac increase caused GI issues and SSRIs gave no relief. They are pursuing a mind-body approach; daily Yoga Nidra helps a little, while a Curable class was pointless for them.
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What they tried
Also tried
Yoga Nidra· Helpedvitamin D supplement and vitamin D and zinc shots by Suja life· Helpedpuzzles and word search games· HelpedCurable· No changeLiquid IV and compression· No changeLiquid IV and compression· No changeLexapro, Prozac, SSRIs· WorseLexapro, Prozac, SSRIs· Worsepropranolol· Worseclonazepam· WorseEyeRehab app visual exercises· WorseFreeME· Not saidCGM· Not said
Their words about each treatment
- Lexapro, Prozac, SSRIs · Worse
Lexapro caused me to gain 30 lbs (10mg only) and basically ruined my metabolism ... Increased Prozac for adrenaline gave me GI issues ... SSRIs didn’t help any of my symptoms
- Curable · No change
I attended a virtual class by curable after seeing your post, it was pointless for me to
In context ↗ - propranolol · Worse
I took propranolol recently for the first time for visual dizziness and it made it 10x worse. ... Propranolol at the lowest dose made me so so dizzy (tried it for pots)
- clonazepam · Worse
I only took one benzo one day (clonazepam) and it made me feel so disconnected. I never took it again
In context ↗ - Liquid IV and compression · No change
Even when I drink one pack liquid IV and wear compression
In context ↗ - FreeME · Not said
I tried some of the free stuff on Freeme and Curable, and found there to be quite a bit of overlap so far at least
In context ↗ - Yoga Nidra · Helped
Recently been doing a 20 minute yoga Nidra YouTube video daily and it definitely relaxes my body. ... I recently started Yoga Nidra on YouTube and that helps a bit!
- CGM · Not said
Yes I used a CGM to find out!
In context ↗ - vitamin D supplement and vitamin D and zinc shots by Suja life · Helped
I can only suggest vitamin D, I didn’t tolerate the typical brands from pharmacies so I got a vegetarian supplement from Amazon and I tolerate that well. ... Also the vitamin D and zinc shots by Suja life
In context ↗ - puzzles and word search games · Helped
Something else that I find helps with brain fogs is doing puzzles and word search games (in a paper book, not screens) for short durations!
In context ↗ - EyeRehab app visual exercises · Worse
I also found an app called EyeRehab that has free visual exercises. Although the first time I did it it made me super dizzy but I bet with time it will help
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2026-06-20 | propranolol made visual dizziness 10x worseI took propranolol recently for the first time for visual dizziness and it made it 10x worse.In context ↗ | |
| 2026-07-14 | daily Yoga Nidra helps a bitI recently started Yoga Nidra on YouTube and that helps a bit!In context ↗ | Meditation, yoga, breathwork |
| 2026-07-27 | still symptomatic; SSRIs gave no reliefSSRIs didn’t help any of my symptomsIn context ↗ |
Adverse events
- Escitalopram (Lexapro)“Lexapro caused me to gain 30 lbs (10mg only) and basically ruined my metabolism” In context ↗ Side effects
- Propranolol (Inderal)“I took propranolol recently for the first time for visual dizziness and it made it 10x worse” In context ↗ Made symptoms worse
- Clonazepam (Klonopin)“I only took one benzo one day (clonazepam) and it made me feel so disconnected” In context ↗ Side effects
- Propranolol (Inderal)“propranolol on the lowest dose for POTS, made me extremely dizzy” In context ↗ Side effects
- Propranolol (Inderal)“Instead my neurologist recommended propranolol and it made me so so dizzy” In context ↗ Side effects
- Fluoxetine (Prozac)“Increased Prozac for adrenaline gave me GI issues” In context ↗ Gut side effects
- “Although the first time I did it it made me super dizzy” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
Something else that I find helps with brain fogs
In context ↗ - POTS & dysautonomia
I have dysautonomia too and my HR jumps from 70 to 130/140 sometimes when standing or walking.
In context ↗ - Light & noise sensitivity
Cant even look at my phone or tv for the last few days.
In context ↗ - Anxiety & low mood
Increased Prozac for adrenaline gave me GI issues
In context ↗