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Long COVID Mild → somewhat betterIll 14 months before improving or writing

Long COVID hot swollen joints, leg weakness; somewhat better, antihistamine helped

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
14 months
Last post
Sep 2023
In their words
  • Condition: Long COVIDGot cleared by a rheumatologist that told me to look into long covid. In context ↗
  • At worst: MildLeg weakness was the worst symptom. Felt like I ran a marathon every morning with how tired they were. In context ↗
  • Now: Somewhat betterIt's getting better but it's a long and slow process. In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on

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Summary

A week after getting COVID for the first time, their hands and feet turned red hot with joint inflammation and swelling/stiffness, plus leg weakness and anxiety attacks. Anxiety eased after about three months and blood tests were normal apart from an ANA staining pattern. Joint symptoms improved slowly. A daily antihistamine in September 2023 helped the leg weakness within a week, enough to exercise fairly well.

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What they tried

Their words about each treatment
  • anti inflammatory diet · Not saidI switched to anti inflammatory diet but I'm allergic to NSAIDs In context ↗
  • different supplements · Not saidTaking different supplements to help In context ↗
  • daily antihistamine · HelpedI just started a daily antihistamine because others with the same issues after covid tried it and it's working fairly well a week in. In context ↗
  • NSAIDs (unspecified) · Not saidI switched to anti inflammatory diet but I'm allergic to NSAIDs, so that makes it difficult. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered3 mo6 mo9 mo12 mo15 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
about 3 months inrandom anxiety attacks stoppedthose started going away after about 3 months In context ↗Mild
September 2023joint symptoms slowly easingHave had it for a little over a year but its getting better slowly. In context ↗Mild
2023-09-13daily antihistamine; able to exercise fairly wellIt's helped significantly with that to where I'm able to exercise fairly well. In context ↗MildH1 antihistamines (unspecified)

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaComes with inflammation of the hands and ankles as well. In context ↗
  • Anxiety & low moodI had random anxiety attacks and I've never had anxiety before. In context ↗
  • Muscle weaknessLeg weakness was the worst symptom. Felt like I ran a marathon every morning with how tired they were. In context ↗

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