ME/CFS
RelapsedIll 5 years before improving or writing
Five years into ME/CFS, five-month alleviation then eight months of worsening
- Condition
- ME/CFS
- At worst
- Not stated
- Ill before improving or writing
- 5 years
- Last post
- Jan 2025
In their words
- Condition: ME/CFS
I've been battling this condition for a while. About 5 years now.
In context ↗ - Now: Relapsed
I had a good alleviation of symptoms for about 5 months and The past 8 months it's been coming back steadily worse.
In context ↗
Summary
Five years into ME/CFS, they reported a five-month alleviation followed by eight months of steady worsening. By January 2025 they had on-and-off chills and burning pelvic and upper arm pain, and had lost their period for seven months; blood work was abnormal and autoimmune testing pending. Naproxen did not help, and with low white blood cells they planned to ask for infection screening.
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What they tried
Also tried
heated blankets and a hot water bottle· Helpednaproxen· No change
Their words about each treatment
- naproxen · No change
nothing is helping, naproxen is not cutting it
In context ↗ - heated blankets and a hot water bottle · Helped
I adore heated blankets and a hot water bottle they are life savers !
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| 2025-01-15 | ME/CFS onset about five years earlierI've been battling this condition for a while. About 5 years now.In context ↗ |
| 3.9 y | five-month alleviation of symptomsI had a good alleviation of symptoms for about 5 monthsIn context ↗ |
| 4.3 y | symptoms returning steadily worse over eight monthsThe past 8 months it's been coming back steadily worse.In context ↗ |
| 2025-01-23 | month-long flare of chills and burning pain; lost periodthis flair has lasted a month now and I'm getting the chills on and off. This week has been particularly intense.In context ↗ |
Symptoms mentioned
Their words about their symptoms
- Temperature regulation
I'm getting the chills on and off
In context ↗ - Pain & fibromyalgia
I've had burning pelvic pain and upper arm pain
In context ↗