ME/CFS
Mild → no benefitIll for 4 years
ME/CFS after COVID with fainting, brain fog and crashes, no improvement despite stimulants
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- 4 years
- Last post
- Apr 2026
In their words
- Condition: ME/CFS
i've had other symptoms as well (memory loss, brain fog, what could likely be PEM)
In context ↗ - At worst: Mild
some days i can't get out of bed because i am just exhausted to my core
In context ↗ - Now: No benefit
my fatigue has gotten significantly worse in the last year or so
In context ↗ - Began after: COVID
i have been experiencing pretty bad heat intolerance for years after i got covid-19
In context ↗
Summary
Four years before posting, this college student's severe heat intolerance, fainting, dizziness, headaches and weakness began after COVID-19, along with memory loss, brain fog and suspected post-exertional malaise. Fatigue worsened over the past year despite stimulant medication for narcolepsy, with some days too exhausted to leave bed and a two-week crash after two concerts in one weekend. A doctor's appointment was pending.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- stimulant medication · Helped
even with stimulant medication, my new one being worlds better than the last
In context ↗ - cooling neck fans · Not said
i've tried cooling neck fans but the battery on max power only lasts an hour or two
In context ↗ - cooling towels · Not said
cooling towels can get really funky
In context ↗ - gatorade · Not said
sadly i can only shove so much gatorade into my body
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about four years before April 2026 | heat intolerance, fainting, headaches and weakness began after COVID-19, during marching bandi remember this starting about four years ago when i was in high school marching band.In context ↗ | Mild |
| in the last year or so | fatigue and heat intolerance got significantly worsemy fatigue has gotten significantly worse in the last year or soIn context ↗ | Mild |
| 2026-04-19 | nearly fainted walking to the dining hall in 87F heat; doctor visit pendingtoday is what made me realize something was seriously wrong and this was getting very dangerousIn context ↗ | Mild |
Symptoms mentioned
Brain fogGut problemsHeadaches & migraineMuscle weaknessPOTS & dysautonomiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- Temperature regulation
i have been experiencing pretty bad heat intolerance for years after i got covid-19
In context ↗ - POTS & dysautonomia
i got super pale, shaky, and got dizzy/lightheaded
In context ↗ - Brain fog
memory loss, brain fog, what could likely be PEM
In context ↗ - Post-exertional malaise
after i went to two concerts in a weekend i was out of commission for about two weeks
In context ↗ - Headaches & migraine
i'd just get really faint, headaches, sweating a ton
In context ↗ - Muscle weakness
feel pretty weak generally during band camp and after field shows
In context ↗ - Gut problems
even the smell of food made me extremely nauseous
In context ↗