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ME/CFS Outcome unclearIll for 5 years

ME/CFS: worst crash left mostly housebound and almost bedridden; magnesium no help

Condition
ME/CFS
At worst
Severe (mostly bedbound)
Ill for
5 years
Last post
Feb 2026
In their words
Read from 6 of their posts and comments; links to the 4 this page draws on

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Summary

Petrel 21329 has had ME/CFS for about five years, starting mild and becoming moderate after overexertion two to three years in. In May 2025 a pattern of delaying sleep triggered the worst crash of their illness, leaving them struggling to get out of bed and, by December 2025, mostly housebound and almost bedridden after a shower. They describe pain and low mood, and report no improvement from magnesium.

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What they tried

Also tried

magnesium· No changewax earplugs (Quies)· Not said
Their words about each treatment
  • wax earplugs (Quies) · Not saidi use wax earplugs, specifically the brand quies In context ↗
  • magnesium · No changeunfortunately it’s done absolutely nothing for me. i take it every night just in case In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
onsetME/CFS began mildI’ve had CFS for 5 years now. It started off mild In context ↗Mild
about 2-3 years inbecame moderate after overexertionabout 2-3 years in it became moderate due to overexertion In context ↗Moderate
May 2025worst crash after delayed sleep patternIt started in May, and I’ve gotten to a point where I’m struggling to get out of bed. In context ↗Severe
2025-12-13housebound, almost bedridden after a showeri’m almost bedridden and in turn, it has had a devastating impact on my mental health In context ↗Severe

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseyesterday i had taken a shower (with a shower stool) for the first time in a while ... today, i’ve been really struggling with pain In context ↗
  • Sleep problemsover the past two years, i’ve developed pretty severe sleep issues In context ↗
  • Pain & fibromyalgiatoday, i’ve been really struggling with pain In context ↗

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