Unable to work with ME/CFS, now much better with low-dose naltrexone and ADHD stimulants
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Jun 2024
In their words
- Condition: ME/CFS
But my CFS has been even worse since then.
In context ↗ - At worst: Severe
I got really severe after my wedding, unfortunately.
In context ↗ - Now: Much better
It really improved my depression, I’m not cured, never will be, but I can go to work now.
In context ↗ - Began after: another virus
I ended up contracting a viral illness that triggered a lot of health issues a few days before my wedding
Read from 21 of their posts and comments; links to the 15 this page draws on
Summary
They fell ill with a viral infection days before their wedding and were unable to work, with pain and depression. Low-dose naltrexone helped and, with ADHD stimulants, got them back to work; they also used methylated supplements, medicinal mushrooms and a high-protein, low-carb diet. By mid-2024 they were walking for about 20 minutes and bodybuilding, though they still kept burning themselves out and reacted badly to Xanax.
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What they tried
What they credit
Also tried
Their words about each treatment
- paxlovid · Helped a lot
paxlovid saved my damn life, but my CFS has been even worse since then
In context ↗ - LDN · Helped a lot
LDN has been an absolute life saver for me, along with adhd stimulant medications when I need them.
In context ↗ - adhd stimulant medications / low dose Ritalin · Helped a lot
I found that low dose Ritalin is amazing for me, the crash sucks but thus far it’s been great for pain and the fatigue.
In context ↗ - Benzos / Xanax · Helped a lot
Benzos are the only thing that have made a HUGE difference, I’ve only had them a few times and because they worked so well my doctors vetoed more, due to the issue of possible dependence
In context ↗ - therapy · No change
I’ve been in years and years and years of therapy, over a decade. They tried “treating the pain” out of me. It didn’t work.
In context ↗ - medications for mental health · Not said
I’ve been on many medications for mental health, I’ve tried almost all of them.
In context ↗ - steroids · Helped
If I’m on steroids, which essentially gets rid of my autoimmune issues and pain, I’m the happiest and healthiest person on earth.
In context ↗ - methylated supplements · Helped
I’ve had a lot of luck with stimulants, LDN, and methylated supplements + cordyceps, lions mane, Reishi, etc.
In context ↗ - holistic/functional doctor · Helped
The only thing I can recommend enough, is a holistic/functional doctor.
In context ↗ - opiates · No change
Never responded well to opiates for pain, but I do respond well to LDN after a year of it
In context ↗ - high fat and low carb, over 100 grams of protein a day · Helped
I do really well ... with over 100 grams of protein a day, high fat and low carb.
In context ↗ - walking and slowly incorporating more activities · Helped
after about 20 minutes of a nice walk especially outside, my fatigue disappears for a few hours
In context ↗ - SUNSHINE · Helped
what helps the most is SUNSHINE! Getting into the sun as much as I can, and walking.
In context ↗
Approaches: Diet · Stimulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2020 | viral illness days before their wedding triggered health issuesI ended up contracting a viral illness that triggered a lot of health issues a few days before my wedding, and that compound on what I have.In context ↗ | Moderate | |
| 2020 | became really severe after their weddingI got really severe after my wedding, unfortunately.In context ↗ | Severe | |
| before May 2023 | COVID made their CFS even worsehaving Covid for me was HORRENDOUS ... but my CFS has been even worse since then.In context ↗ | Not stated | |
| 2023-05-11 | LDN and stimulants; able to go to work againLDN has been an absolute life saver for me ... but I can go to work now.In context ↗ | Mild | Low-dose naltrexone |
| 2024-06-16 | burning out from slowly adding activitiesI think it got better due to slowly slowly incorporating more activities, but lately I keep burning myself out…In context ↗ | Mild | |
| 2024-06-20 | working, walking and bodybuilding, with sun and wineafter about 20 minutes of a nice walk especially outside, my fatigue disappears for a few hoursIn context ↗ | Mild | Low-dose naltrexone |
Adverse events
- Corticosteroid pulses“I can’t be on them longer than a week or so due to side effects” In context ↗ Side effects
- Methylphenidate (Ritalin, Concerta)“when they wear off I am much worse” In context ↗ Made symptoms worse
- Alprazolam (Xanax)“It made my fatigue way worse 😅 I took like .12mg, so a very small dose and the side effects are awful.” In context ↗ Made symptoms worse
- Methylphenidate (Ritalin, Concerta)“the crash sucks but thus far it’s been great for pain and the fatigue” In context ↗ Made symptoms worse
- Everyday exercise and activity“lately I keep burning myself out” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
thus far it’s been great for pain and the fatigue
In context ↗ - Anxiety & low mood
It really improved my depression, I’m not cured, never will be
In context ↗
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