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ME/CFS RelapsedIll 10 years before improving or writing

ME/CFS improved, then COVID and an abusive relationship caused a relapse

Condition
ME/CFS
At worst
Not stated
Ill before improving or writing
10 years
Last post
Aug 2026
In their words
  • Condition: ME/CFSMaybe what we call ME CFS is a syndrome with multiple possible causes, as some theorize. In context ↗
  • Now: RelapsedI got better for a few years and then COVID got me and life has never been the same. In context ↗
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

They described being ill since their late twenties and gradually improving by their late thirties, when they were back to functioning as a normal adult but could no longer run or do 10 mile hikes. A COVID infection and an abusive relationship undid that gain, and they said life had never been the same and that things kept getting worse. They also had fibromyalgia and had had endometriosis surgery.

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Asking aboutTrail 28873’s story

What they tried

Their words about each treatment
  • lesion ablation · Not saidgot my lesions ablated a few years back In context ↗
  • time · Helped a lotI started getting better in my late thirties but COVID ruined everything In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
late twentiesillness beganI’m middle aged and have been dealing with this since late twenties. In context ↗Not stated
late thirtiesback to functioning as a normal adult, though no longer able to run or do 10 mile hikesLate 30s I still couldn’t run or do 10 mile hikes anymore but I was back to functioning as a normal adult. In context ↗Near normal
a few years after the improvementCOVID infection and an abusive relationshipI got better for a few years and then COVID got me and life has never been the same. In context ↗Not stated
latelykeeps getting worseFibro and they tell me to push through but lately it keeps getting worse. In context ↗Not stated

Symptoms mentioned

Their words about their symptoms
  • Pain & fibromyalgiaFibro and they tell me to push through but lately it keeps getting worse. In context ↗

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