ME/CFS cognition lost sub-clauses, now somewhat better with pulse alarm and sleep meds
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- Mar 2024
In their words
- Condition: ME/CFS
May just have been the ME/CFS getting worse generally at the same time
In context ↗ - At worst: Mild
After a period of utter stupidity (e.g. not able to use sub-clauses in sentences because I'd forget the main thread) a couple of years back
In context ↗ - Now: Somewhat better
After a period of utter stupidity ... I am now back to passing as normal, but I'm really only a shadow of my former self
In context ↗
Read from 5 of their posts and comments; links to the 5 this page draws on
Summary
Alder 79301 has ME/CFS and manages it with a Polar watch that alarms when the pulse rises, and 7.5 mg mirtazapine plus 1 mg melatonin for sleep. They took Wellbutrin for about 14 months after a COVID infection but stopped because they felt switched on and anxious, then had less energy on an SSRI. Cognition had a period a couple of years back when they could not use sub-clauses because they forgot the main thread; they now pass as normal but remain a shadow of their former self.
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What they tried
What they credit
Their words about each treatment
- Polar watch · Helped
A tool that helps me is my fitness tracker which alarms me when my pulse is rising.
In context ↗ - Mirtazapin · Helped
7.5 mg Mirtazapin an hour before sleeping and 1 mg Melatonin half an hour before help quite well, without any major side effects.
In context ↗ - Wellbutrin · Worse
Stopped taking it because I felt too switched on all the time and could never relax, felt anxiety a lot of the evenings.
In context ↗ - SSRI · Not said
Felt much more myself on the SSRI that I switched to, but have had less energy since.
In context ↗
Approaches: Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| a couple of years back | cognitive nadir, could not follow a sentenceAfter a period of utter stupidity (e.g. not able to use sub-clauses in sentences because I'd forget the main thread) a couple of years backIn context ↗ | Not stated |
| 2024-02-27 | reading a 240-page book in a day, up from 20-50 pagesReceiving a new book by one of my favourite author yesterady, and I may be able to finish the 240 pages today. Struggled so much with the last book, 20 - 50 pages a day only.In context ↗ | Mild |
| 2024-03-11 | passing as normal cognitively but a shadow of former selfI am now back to passing as normal, but I'm really only a shadow of my former self.In context ↗ | Mild |
Adverse events
- Bupropion (Wellbutrin)“Stopped taking it because I felt too switched on all the time and could never relax, felt anxiety a lot of the evenings.” In context ↗ Mood or psychiatric effects
- Bupropion (Wellbutrin)“Felt much more myself on the SSRI that I switched to, but have had less energy since. May just have been the ME/CFS getting worse generally at the same time, may have been connected.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Brain fog
I used to be able to do two, sometimes more, things at the same time in a lot of cases ... No more.
In context ↗ - Sleep problems
For me personally 7.5 mg Mirtazapin an hour before sleeping and 1 mg Melatonin half an hour before help quite well, without any major side effects.
In context ↗
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