Mild-to-moderate ME/CFS, mostly housebound, ivabradine gave no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 1 year
- Last post
- Oct 2026
In their words
- At worst: Moderate
I’ve had pretty moderate/mild ME for about a year now and it progressed over that year.
In context ↗ - Now: No benefit
when I’m off the vyvanse i can’t sleep at night, along with my chronic fatigue becoming utterly debilitating.
In context ↗
Read from 5 of their posts and comments; links to the 4 this page draws on
Summary
Owl 43209 had had mild-to-moderate ME for about a year when diagnosed in September 2026, used a cane when leaving the apartment, felt more functional when mostly housebound, and also had fibromyalgia and IST. Slowing down and pacing gave more energy for chores, hygiene and online classes, and Vyvanse helped chronic fatigue, though they noticed low-grade fevers of unclear cause. Ivabradine did not work and metoprolol was not an option because it interacts with their antidepressants.
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What they tried
Their words about each treatment
- pacing · Helped
I’ve noticed that this has helped me have energy to do household chores like dishes and cleaning
In context ↗ - vyvanse · Helped
And it does truly help me with my chronic fatigue, otherwise I’d be asleep all day haha
In context ↗ - ivabridine · No change
My body did not respond to ivabridine
In context ↗ - antidepressants · Not said
metoprolol interacts with my antidepressants
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 12 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2025 | ME began and progressed over the yearI’ve had pretty moderate/mild ME for about a year now and it progressed over that year.In context ↗ | Not stated | |
| September 2026 | mostly housebound, stopped working, needed a caneI stopped working to make time for my school which I had switched into online classes. ... I use a cane to get around *if* I leave my apartment | Moderate | |
| 2026-10-01 | slowed down and paced, more energy for chores and classesthis has helped me have energy to do household chores like dishes and cleaning ... I’ve been able to keep up with my classworkIn context ↗ | Mild | Pacing and the energy envelope |
| 2026-10-25 | Vyvanse keeping chronic fatigue manageable, but low-grade feversit does truly help me with my chronic fatigue, otherwise I’d be asleep all day hahaIn context ↗ | Mild | Lisdexamfetamine (Vyvanse, Elvanse) |
Adverse events
- Lisdexamfetamine (Vyvanse, Elvanse)“I’ve noticed that when I take my vyvanse, i feel really feverish and warm on and off” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
But I also know I’d regret it if I crashed and got worse.
In context ↗ - Temperature regulation
i feel really feverish and warm on and off
In context ↗ - Sleep problems
when I’m off the vyvanse i can’t sleep at night
In context ↗ - Pain & fibromyalgia
having been diagnosed with fibromyalgia for the past 7 ish years
In context ↗