ME/CFS
Severe → no benefitIll for 3 years
Bedbound most of the time with ME/CFS, tried pacing but saw no benefit
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 3 years
- Last post
- Mar 2025
In their words
- At worst: Severe
I’m already at the point where I’m bed bound most the time and I’m finding it difficult to speak
In context ↗ - Now: No benefit
I seem to always only feel a little bit better when I rest not much better and for very short periods of time.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Canyon 30910 had not worked in three years, was bedbound most of the time and found it difficult to speak. They had not yet been diagnosed. They began pacing on 30 March 2025 and felt better after resting as soon as their body hurt, but the benefit was only slight and brief. They said they would keep pacing to avoid making things worse.
Ask Miruvor AI
What they tried
Also tried
Their words about each treatment
- pacing · Helped
I even did it today and felt so much better when got up after I laid down as soon as my body was hurting, instead of pushing through it.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2025-03-30 | bedbound most of the time; unable to work for 3 yearsI’m already at the point where I’m bed bound most the time and I’m finding it difficult to speakIn context ↗ | Severe | |
| 2025-03-30 | rested as soon as body hurt; brief slight improvementI even did it today and felt so much better when got up after I laid down as soon as my body was hurtingIn context ↗ | Severe | Pacing and the energy envelope |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I had no idea that I was making it worse.
In context ↗ - Pain & fibromyalgia
as soon as my body was hurting
In context ↗