Long COVID at 20% at lowest, now about 60%, crediting time and famotidine
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 years
- Last post
- Feb 2026
In their words
- Condition: Long COVID
Have had LC from the first wave so quite a few years.
In context ↗ - At worst: Severe
Was at 20%, now about 60%.
In context ↗ - Now: Much better
Was at 20%, now about 60% ... Still a long way off well
In context ↗ - Began after: COVID
Have had LC from the first wave so quite a few years.
In context ↗
Summary
Zephyr 60912 has had long COVID since the first wave, with testicle pain among other issues, and was at 20% at their lowest. By February 2026 they were at about 60%, crediting time, prescribed famotidine and fexofenadine, creatine, daily magnesium salt baths and prescribed vitamin D, with a strict low-histamine diet easing the pain. They were still far from well and were considering nicotine patches.
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What they tried
What they credit
Their words about each treatment
- strict low histamine diet · Helped
We have also cleaned up my diet strict low histamine diet. Noticed a difference in the pain once I cut out refined sugar and mostly caffeine.
In context ↗ - time · Helped
So far the things that have helped are time
In context ↗ - famotdine · Helped
prescribed anti histamines (famotdine and fexofenadine)
In context ↗ - creatine · Helped
the things that have helped are time, prescribed anti histamines (famotdine and fexofenadine), creatine, magnesium salt baths daily
In context ↗ - prescribed Vit D · Not said
Also have a persistent low vitamin D so on prescribed Vit D.
In context ↗
Approaches: H1 antihistamines · H2 blockers · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| first wave (2020) | long COVID from the first wave; down to 20% of normalHave had LC from the first wave so quite a few years. ... Was at 20%, now about 60%.In context ↗ | Severe | |
| 2024-07-07 | testicle pain eased after cleaning up diet and cutting refined sugar and caffeineNoticed a difference in the pain once I cut out refined sugar and mostly caffeine.In context ↗ | Not stated | |
| 2026-02-17 | up to about 60% of normal after time, antihistamines, creatine and magnesium bathsWas at 20%, now about 60%.Still a long way off wellIn context ↗ | Mild | Time and spontaneous remission |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
I have had testicle pain attributed to long covid. It is one of many issues that I have.
In context ↗
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