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ME/CFS Mild → somewhat betterIll 4 years before improving or writing

ME/CFS fatigue and crashes, somewhat better after stopping running and microdosing LSD

Condition
ME/CFS
At worst
Mild (working or studying, with limits)
Ill before improving or writing
4 years
Last post
May 2021
In their words
  • Condition: ME/CFSAbout four years ago I started suffering from PEM and a cluster of other symptoms. In context ↗
  • At worst: MildI had been running pretty religiously even though I would occasionally push myself into weeks-long episodes of PEM. In context ↗
  • Now: Somewhat betterCrashes are now less overwhelming and fatigue comes and goes throughout the day instead of lasting for days on end. In context ↗
  • Began after: glandular fever or EBVA year and a half ago I was diagnosed with a post-viral syndrome due to EBV.
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

About four years before May 2021 Heron 53489 developed PEM and a cluster of other symptoms, later diagnosed as post-viral syndrome from EBV. After a knee injury in September 2020 they gave up running, then walking, and felt much more energetic, clearer-headed and sleeping better. Microdosing LSD from around March 2021 made crashes less overwhelming and fatigue less continuous. Fatigue and crashes remained.

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Asking aboutHeron 53489’s story

What they tried

Also tried

Their words about each treatment
  • running · WorseI had been running pretty religiously even though I would occasionally push myself into weeks-long episodes of PEM. In context ↗
  • stopping exercise / rest · Helped a lotI stopped exercising and I feel so much better. In context ↗
  • microdosing LSD · HelpedI started microdosing LSD a couple months ago and actually it's been a bit of a turning point for me. In context ↗

Approaches: Other drugs and medicines · Pacing

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2017 (about four years before May 2021)PEM and a cluster of other symptoms beganAbout four years ago I started suffering from PEM and a cluster of other symptoms. In context ↗Mild
September 2020hurt knee, switched from running to walking, more energylast September I hurt my knee ... so I switched to walking, and it was amazing how much more energy I had during the day! In context ↗MildPacing and the energy envelope
early 2021 (recently)stopped going for walks, even more energyRecently I even stopped going for walks and now I have even more energy! In context ↗MildPacing and the energy envelope
2021-05-28microdosing LSD; crashes less overwhelming, more energy, sleeping betterI started microdosing LSD a couple months ago and actually it's been a bit of a turning point for me. In context ↗Mild

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseCrashes are now less overwhelming In context ↗
  • Sleep problemsI am getting more clear-headed, sleeping better, getting more done during the day. In context ↗
  • Brain fogI am getting more clear-headed In context ↗

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