Long COVID crash, now somewhat better with low-dose naltrexone and mushrooms
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Aug 2023
In their words
- Condition: Long COVID
Now this long Covid stuff which is kind of getting much better after a full year
In context ↗ - At worst: Severe
I can hardly do anything right now.
In context ↗ - Now: Somewhat better
Now this long Covid stuff which is kind of getting much better after a full year
In context ↗ - Began after: COVID
I was still sick from Covid about 8 weeks.
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
Pond 28843 became ill with long Covid around August 2022 and was still sick eight weeks later. They crashed badly after trying to get fit again, then in July 2023 said low-dose naltrexone was the only thing that had jolted them into starting to get better, though later that month they could hardly do anything. They reported a bit of benefit from reishi and lion’s mane mushroom powder, and by August 2023 said their long Covid was getting much better after a full year.
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What they tried
What they credit
Also tried
Their words about each treatment
- trying to get back to getting fit · Much worse
I tried to get back to getting fit thinking it would help but it just made things worse and I crashed really badly
In context ↗ - low dose naltrexone · Helped
it’s the only thing that’s jolted me into feeling like I’m starting to get better
In context ↗ - powder you drink that had reishi lions maine, and two other mushrooms · Helped
I ran out but I think it did actually make me feel a bit better
In context ↗ - anti-inflammatories · No change
anti-inflammatories and lots of basic healthy foods, soups, smoothies, electrolytes, weed and valium…and rest don’t do anything
In context ↗ - weed · No change
weed and valium…and rest don’t do anything
In context ↗ - supplement tablets · Not said
I take two handfuls of supplement tablets every morning
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 10 months after onset: the story doesn’t say how ill they were before that. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| about August 2022 | Covid infection and ongoing long CovidI was still sick from Covid about 8 weeks.In context ↗ | Not stated | |
| before July 2023 | crashed badly after trying to get fit againI tried to get back to getting fit thinking it would help but it just made things worse and I crashed really badlyIn context ↗ | Severe | |
| 2023-07-03 | low-dose naltrexone jolted them into starting to get betterit’s the only thing that’s jolted me into feeling like I’m starting to get betterIn context ↗ | Not stated | Low-dose naltrexone |
| 2023-07-18 | a few days of feeling greatI had a few days of feeling great like the best I can remember since getting sickIn context ↗ | Mild | |
| 2023-07-19 | reishi and lion's mane mushroom powder gave a bit of benefitI think it did actually make me feel a bit betterIn context ↗ | Not stated | AHCC and medicinal mushrooms (reishi, shiitake, maitake) |
| 2023-07-22 | got bad again and could hardly do anythingI felt like maybe I’d stare to get better then i got bad again I can hardly do anything right now.In context ↗ | Severe | |
| 2023-08-17 | long Covid getting much better after a full yearthis long Covid stuff which is kind of getting much better after a full yearIn context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I tried to get back to getting fit thinking it would help but it just made things worse and I crashed really badly
In context ↗ - Pain & fibromyalgia
I had a sore lower back for about 2 years and that really put me in a bad state because it effected me 24 hours a feat
In context ↗ - Anxiety & low mood
felt like crying at how traumatic it’s been
In context ↗
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