ME/CFS: pain, gut inflammation and crashes; diet ended flu-like symptoms, somewhat better
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 9 months
- Last post
- Sep 2019
In their words
- Condition: ME/CFS
I kept trying to exercise to build energy and strength but would just crash hard for days.
In context ↗ - At worst: Moderate
Now the littlest tasks seem like climbing a mountain.
In context ↗ - Now: Somewhat better
eliminating certain foods got me out of that, just didn’t heal me back to my old athletic self
In context ↗ - Began after: another virus
after a virus that rib pain just came out of nowhere
In context ↗
Summary
Tundra 43755 became ill in late 2018 after a virus, with pain, severe gut inflammation and crashes that lasted days after exercise. They quit a 40-50 hour tech sales job and were living with their parents. Eliminating certain foods ended constant flu-like symptoms but did not restore their old energy, and exertion still caused crashes. They were still limited at their latest post.
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What they tried
What they credit
Their words about each treatment
- fasting · Worse
I tried fasting but my energy is too depleted from it.
In context ↗ - exercise · Worse
I kept trying to exercise to build energy and strength but would just crash hard for days.
In context ↗ - eliminating certain foods · Helped
eliminating certain foods got me out of that, just didn’t heal me back to my old athletic self
In context ↗ - pot · Helped
Pot helps a lot with pain, mood basically EVERYTHING but it doesn’t seem productive to healing.
In context ↗ - therapy · Not said
I go to therapy to cope with this situation.
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| late 2018 | illness began after a virusafter a virus that rib pain just came out of nowhereIn context ↗ | Not stated | |
| — | constant flu-like state, quit job and moved in with parentsI was stuck in that for a while but eliminating certain foods got me out of thatIn context ↗ | Moderate | |
| — | crashed for days after trying to exerciseI kept trying to exercise to build energy and strength but would just crash hard for daysIn context ↗ | Moderate | |
| — | eliminating certain foods ended constant flu-like symptomseliminating certain foods got me out of that, just didn’t heal me back to my old athletic selfIn context ↗ | Moderate | Elimination diets (other) |
| 2019-09-03 | still limited nine months inNow the littlest tasks seem like climbing a mountainIn context ↗ | Moderate |
Adverse events
- Extended water fasting (3+ days)“I tried fasting but my energy is too depleted from it.” In context ↗ Made symptoms worse
- Everyday exercise and activity“I kept trying to exercise to build energy and strength but would just crash hard for days.” In context ↗ Made symptoms worse
- Cannabis (THC, marijuana)“Now if I smoke it’s get me super tired and that’s a wrap on the day” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I kept trying to exercise to build energy and strength but would just crash hard for days
In context ↗ - Gut problems
Gastritis, duodenitis, esophagitis, ulcers confirmed, it’s basically red & raw in there
In context ↗ - Pain & fibromyalgia
The pain is confusing tbh
In context ↗ - Flu-like symptoms
I was stuck in that for a while but eliminating certain foods got me out of that
In context ↗ - POTS & dysautonomia
Gluten will leave me feeling fatigued, dizzy and heavy
In context ↗
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