ME/CFS
Mild → no benefit
ME/CFS with severe insomnia and exhaustion, still asking how to fix sleep
- Condition
- ME/CFS
- At worst
- Mild (working or studying, with limits)
- Ill for
- Not stated
- Last post
- Jan 2014
In their words
- Condition: ME/CFS
I suffer from CFS, as well as fibro, migraines, depression, anxiety
In context ↗ - At worst: Mild
when I am not working, I usually can't stop myself from going to bed until 6am
In context ↗ - Now: No benefit
no matter how little, normal, or lot of sleep I get, I always wake up exhausted and ready for more sleep
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
Jenna was 22 when she wrote in 2014 about CFS with fibromyalgia, migraines, depression and anxiety, and a badly disrupted sleep cycle: severe insomnia, sleeping past sunset and waking exhausted. She was prescribed Ambien but rarely took it, and had been on 600 mg of Seroquel, which left her groggy. Weaning off over six months brought sleepless nights and severe itching. She still worked at times and was asking how to fix her sleep.
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What they tried
Their words about each treatment
- Seroquel · Worse
A few years ago I was on 600mg of Seroquel because that's the only dose that helped
In context ↗ - benadryl · Helped
which had the unintended side effect of letting me fall asleep, but then I started becoming dependant on that, so I had to stop
In context ↗ - Ambien · Not said
I have Ambien prescribed to me, but I don't take it that much
In context ↗ - Melatonin · No change
Please don't suggest Melatonin - that's like trying to empty the ocean with a coffee mug.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2014-01-21 | CFS with fibromyalgia, migraines, depression and anxiety; severe insomniaI suffer from CFS, as well as fibro, migraines, depression, anxietyIn context ↗ | Mild |
| 2014-01-21 | still working at times, sleep cycle badly disrupted, no improvement reportedwhen I am not working, I usually can't stop myself from going to bed until 6amIn context ↗ | Mild |
Adverse events
- Quetiapine (Seroquel)“It also really left me groggy in a very worrisome way all the time.” In context ↗ Side effects
- Quetiapine (Seroquel)“that first night I didn't take it, absolutely no sleep. In fact, I didn't get any sleep for the next few nights” In context ↗ Withdrawal problems
- Quetiapine (Seroquel)“And then, the itching started. It was absolutely horrible, I was literally scratching myself with a knife to try to get *some* sort of relief.” In context ↗ Withdrawal problems
- Diphenhydramine (Benadryl)“which had the unintended side effect of letting me fall asleep, but then I started becoming dependant on that, so I had to stop.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Sleep problems
I have absolutely terrible insomnia, but once I am asleep I stay asleep until an alarm goes off
In context ↗ - Pain & fibromyalgia
I suffer from CFS, as well as fibro
In context ↗ - Headaches & migraine
as well as fibro, migraines, depression, anxiety
In context ↗ - Anxiety & low mood
depression, anxiety
In context ↗