Long COVID
Severe → no benefitIll for 18 months
Alice's story
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill for
- 18 months
- Published
- No date given
Read the original ↗
In their words
- Condition: Long COVID
have both had Long Covid since April 2020
In context ↗ - At worst: Severe
I am still largely unable to work ( 10% capacity max)
In context ↗ - Now: No benefit
I am still largely unable to work ( 10% capacity max)
In context ↗ - Began after: COVID
having had a mild form of Covid in March 2020
Summary
Alice, a self-employed artist, had a mild Covid infection in March 2020 and has had Long Covid since April 2020, which got a lot worse during 2020 because no one advised pacing between relapses. By September 2021 Alice was still largely unable to work, at about 10% capacity, and could barely manage day-to-day chores. No meaningful treatment followed the early 2021 assessment, and Alice was discharged back to a GP.
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What they tried
Also tried
Their words about each treatment
- “living with” app · Not said
monitored remotely via the use of the “living with” app
In context ↗
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them.
| When | What happened | Where they were |
|---|---|---|
| April 2020 | Long Covid began after a mild Covid infection in March 2020we (me 56, my husband 72) have both had Long Covid since April 2020, having had a mild form of Covid in March 2020In context ↗ | Not stated |
| during 2020 | got a lot worse after relapses without pacing adviceIt got a lot worse during 2020 because no one told us to pace ourselves in between relapsesIn context ↗ | Not stated |
| September 2021 | still largely unable to work at about 10% capacity, barely managing chores, self-managing after dischargeI am still largely unable to work ( 10% capacity max)In context ↗ | Severe |
Symptoms mentioned
Anxiety & low moodHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomia
Their words about their symptoms
- POTS & dysautonomia
debilitating dizziness which he diagnosed as vestibular migraine
In context ↗ - Headaches & migraine
vestibular migraine. This is still very much going on.
In context ↗ - Heart symptoms & palpitations
The cardiology investigations showed mild inflammation of the heart which hopefully will get better
In context ↗ - Neuropathy & tingling
I am still waiting for a diagnosis on nerve issues
In context ↗ - Anxiety & low mood
talking therapy to help with anxiety issues
In context ↗