Long COVID flares, better after low-histamine diet and a car, then back to square one
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 months
- Last post
- Oct 2024
In their words
- Condition: Long COVID
I suspect that I have histamine intolerance or MCAS after getting Covid in July.
In context ↗ - At worst: Mild
Luckily I don’t work 5 days a week so I’m not taking the bus everyday
In context ↗ - Now: Relapsed
things cleared up in about a week ... I’ve been back to square one.
In context ↗ - Began after: COVID
after getting Covid in July
Read from 1 of their posts and comments; links to the one this page draws on
Summary
After catching Covid in July, they suspected histamine intolerance or MCAS and had flares that followed bus travel, Pilates and a massage. Cutting high-histamine foods and getting a car cleared things up within about a week, but car trouble and more transit use brought them back to square one with brain fog and mood shifts. Famotidine did nothing and they were asking for other medication options.
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What they tried
What they credit
Their words about each treatment
- Pilates at home · Not said
was taking the bus a lot, and starting to do Pilates at home
In context ↗ - cut out high histamine foods · Helped
Learned histamine could be the culprit and cut out high histamine foods, and was able to get a car, so things cleared up in about a week.
In context ↗ - Famotidine · No change
Only have tried Famotidine which doesn’t seem to do anything
In context ↗ - massage · Worse
also receiving a massage in my massage class pushed it over the edge
In context ↗
Approaches: Diet
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| July 2024 | caught CovidI suspect that I have histamine intolerance or MCAS after getting Covid in July.In context ↗ | Mild | |
| end of August 2024 | first flare while taking the bus a lot and starting PilatesMy first flare was end of August when I was in desperate need of a new car and was taking the bus a lot, and starting to do Pilates at home.In context ↗ | Mild | |
| early September 2024 | cleared up after cutting high-histamine foods and getting a carcut out high histamine foods, and was able to get a car, so things cleared up in about a week.In context ↗ | Near normal | Low-histamine diet |
| two weeks before 2024-10-05 | car trouble, no driving, back to square oneHave had car issues so haven’t been able to drive for 2wks and I’ve been back to square one.In context ↗ | Mild | |
| last week (late September 2024) | public transit and a massage pushed it over the edgeLast week I made the public transit connection bc that was the main thing that seemed to be different in my routine (also receiving a massage in my massage class pushed it over the edge.)In context ↗ | Mild | |
| 2024-10-05 | flare after riding the bus again, with brain fog and mood shiftsBut I did yesterday and I’m at a loss for what to do. Horrible brain fog and mood shifts today.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Riding public transit seems to cause the worst flares.
In context ↗ - Brain fog
Horrible brain fog and mood shifts today
In context ↗ - Mast cell (MCAS) & allergies
I suspect that I have histamine intolerance or MCAS
In context ↗
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