Long COVID with sensory overload, somewhat better after Mestinon and Chilipad
- Condition
- Long COVID
- At worst
- Not stated
- Ill before improving or writing
- 3 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
My body had been so overwhelmed by external stimuli for so long that I unconsciously stopped seeking out things that used to bring me joy.
In context ↗ - Now: Somewhat better
Sometimes improvements show up in small ways if you are paying attention.
In context ↗
Summary
They had trouble staying cool at night for more than three years, and a Chilipad helped keep them cool at night. Their body had been so overwhelmed by external stimuli that they stopped seeking out things that used to bring them joy, and even their partner’s touch became noxious at times, but recently starting Mestinon helped, and they were shopping for perfume and listening to Spotify again. Their goal was presence in everyday life rather than returning to who they used to be.
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What they tried
What they credit
Also tried
Their words about each treatment
- Chilipad · Helped
My husband bought me something called a Chilipad and it’s a LIFE SAVER.
In context ↗ - Mestinon · Helped
I do think that sympathetic activation played a part and that recently starting Mestinon has helped.
In context ↗
Approaches: POTS medication
Their path
They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| by 2024-11-10 | dealing with night sweats for 3+ yearsI’ve been dealing with the same thing for 3+ years.In context ↗ | |
| 2026-08-07 | recently started Mestinon and is enjoying music and scent againalthough I do think that sympathetic activation played a part and that recently starting Mestinon has helpedIn context ↗ | Mestinon / pyridostigmine |
Symptoms mentioned
Their words about their symptoms
- Temperature regulation
I’ve been dealing with the same thing for 3+ years.
In context ↗ - Light & noise sensitivity
My body had been so overwhelmed by external stimuli for so long that I unconsciously stopped seeking out things that used to bring me joy. Even my partner’s touch became noxious at times.
In context ↗
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