Recurring flu-like episodes with extreme fatigue and ME/CFS, no improvement
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill for
- 2 years
- Last post
- Jan 2025
In their words
- Condition: ME/CFS
Getting colds 1-3 times a month, is it actually PEM?
In context ↗ - At worst: Moderate
Extreme fatigue (usually bed bound or apartment bound)
In context ↗ - Now: No benefit
it’s clearly getting worse, I'm getting less days between these things :(
In context ↗ - Began after: COVID
This started after a bad case of Covid in late 2022.
In context ↗
Read from 1 of their posts and comments; links to the one this page draws on
Summary
A 35-year-old woman developed recurring cold- and flu-like episodes after a bad case of COVID in late 2022, with extreme fatigue, body aches, feverishness and sore throat one to three times a month, usually lasting 4-14 days but once 4 weeks. Between episodes she felt normal and could jog and socialise, but the episodes were getting more frequent and she had cancelled every trip planned in 2024. She was asking whether this was PEM.
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What they tried
Also tried
Their words about each treatment
- therapy · Helped
I do have anxiety and PTSD, but I’m in therapy and take great meds for this!
In context ↗ - meds · Helped
I’m in therapy and take great meds for this! Really happy with my life / mental health outside of this.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| late 2022 | bad case of COVIDThis started after a bad case of Covid in late 2022.In context ↗ | Not stated |
| 2023-2024 | recurring cold/flu-like episodes, bed or apartment bound during themExtreme fatigue (usually bed bound or apartment bound)In context ↗ | Moderate |
| 2025-01-02 | episodes getting more frequent, fewer well days betweenit’s clearly getting worse, I'm getting less days between these things :(In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Flu-like symptoms
Feeling feverish without a fever (I’ve never gotten higher than 99)
In context ↗ - Pain & fibromyalgia
Major body aches
In context ↗ - Anxiety & low mood
Depressed, but usually because I feel like I’m missing out of my LIFE.
In context ↗