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Long COVID Moderate → no benefitIll for 3.5 years

Long COVID with breathlessness and worsening hair loss; supplements did nothing

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
3.5 years
Last post
Apr 2026
In their words
  • Condition: Long COVIDIt began shortly after I had covid. ... I believe post covid/ long covid is the same as mcas In context ↗
  • At worst: ModerateI struggled with breathing and standing for longer than 5 minutes ... I also couldnt eat for around two weeks because everything made me sick. In context ↗
  • Now: No benefitThe hair situation hasn't improved at all since then and it's getting slowly but surely worse. In context ↗
  • Began after: COVIDIt began shortly after I had covid.
Read from 1 of their posts and comments; links to the one this page draws on

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Summary

Osprey 67325's hair loss began around September 2022, shortly after COVID. Soon after the infection they struggled to breathe and to stand for longer than five minutes, could not eat for two weeks, lost 10 kg and burped for three months. The hair loss has kept worsening, and they also have fatigue and new food sensitivities and allergies. Supplementing low vitamin D and ferritin, a high-protein diet, rosemary oil and a dermaroller did nothing.

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What they tried

Their words about each treatment
  • vitamin D supplement · No changeUnfortunately none of this has made any difference at all so far. In context ↗
  • rosemary oil · No changehave been using rosemary oil and used a dermaroller consistently for three months In context ↗
  • Trichosense supplements · Not saidsold me three overpriced supplements (all Trichosense) In context ↗

Their path

They say too little about how ill they were at each step to draw it on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedWhere they were
September 2022hair loss began shortly after a COVID infectionI'm really struggling with ongoing hair loss that started around September 2022. It began shortly after I had covid. In context ↗Not stated
about two weeks after the covid infectionbreathing and standing trouble, could not eat for two weeks, hair fell out in clumpsI struggled with breathing and standing for longer than 5 minutes ... I also couldnt eat for around two weeks because everything made me sick. In context ↗Moderate
April 2026hair loss still worsening, ongoing fatigue and new food sensitivities and allergiesThe hair situation hasn't improved at all since then and it's getting slowly but surely worse. In context ↗Not stated

Symptoms mentioned

Their words about their symptoms
  • Hair lossThe hair situation hasn't improved at all since then and it's getting slowly but surely worse. In context ↗
  • BreathlessnessI struggled with breathing and standing for longer than 5 minutes In context ↗
  • POTS & dysautonomiaI struggled with breathing and standing for longer than 5 minutes and my arms turned grey and hurt when I raised them for too long In context ↗
  • Mast cell (MCAS) & allergiesI also have fatigue and food senitivities and allergies I never had before In context ↗

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