Bedbound on and off with ME/CFS, now much better on low-dose naltrexone and nattokinase
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- a few years
- Last post
- Apr 2024
In their words
- Condition: ME/CFS
the LDN is what’s got me back to precovid CFS level
In context ↗ - At worst: Severe
I had been bedbound on and off the past few years
In context ↗ - Now: Much better
I’m nearly back to precovid energy levels ... now I can be active for several hours a day
- Began after: COVID
I’m nearly back to precovid energy levels
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
A person with long COVID and CFS, bedbound on and off for a few years, credited low-dose naltrexone (built to 4.5 mg) and nattokinase with the biggest difference. Improvement was gradual: at two months they could be up doing things for an hour, and by April 2024 they were active several hours a day and nearly back to pre-COVID energy, still improving. A repeat COVID vaccination made no difference.
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What they tried
What they credit
Their words about each treatment
- vaccinated again · No change
I got vaccinated again in April and it made no difference to mine
In context ↗ - nattokinese / Natto -Serra · Helped
I’m also taking nattokinese and have had improvement from it
In context ↗ - LDN · Helped a lot
this and Natto have made the biggest difference for me personally
In context ↗ - weed · Not said
I smoke weed all day. I haven’t had any negatives from it.
In context ↗ - Uniquinol · Not said
I’m also taking Uniquinol and Natto -Serra, but the LDN is what’s got me back to precovid CFS level
In context ↗
Approaches: Anticoagulants
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| — | onset of long COVID / CFSI’m nearly back to precovid energy levelsIn context ↗ | Not stated | |
| before starting LDN | bedbound on and off for years, relapsed and bedboundI had relapsed and was bedbound before the LDNIn context ↗ | Severe | |
| 2 months after starting LDN | up doing things for about an hourI think at the 2 month mark I was up doing stuff for an hour or soIn context ↗ | Severe | Low-dose naltrexone |
| 2024-04-14 | active several hours a day, still improving on LDNnow I can be active for several hours a dayIn context ↗ | Mild | Low-dose naltrexone |
Symptoms mentioned
Their words about their symptoms
- Muscle weakness
I have similar symptoms to yours.
In context ↗
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