Long COVID four years, now almost back to normal; hydroxyzine and Xyzal helped symptoms
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 4 years
- Last post
- Nov 2024
In their words
- Condition: Long COVID
The long covid symptoms lasted over a year with no improvement
In context ↗ - At worst: Mild
I never stopped working even when I most definitely should have
In context ↗ - Now: Near normal
Right now I feel good and like It's 90% better than it was.
In context ↗ - Began after: COVID
My first infection was in 2020 when no one had any clue what to do.
In context ↗
Read from 20 of their posts and comments; links to the 10 this page draws on
Summary
They caught COVID in 2020 and had long COVID for about four years, working through it instead of resting. They were reinfected many times; each reinfection reset their symptoms but they cleared faster each time, the last within two weeks. By late 2024 they felt 90% better than at their worst, left with slight stomach acidity, a stuffy nose and head pressure. Hydroxyzine, Xyzal and electrolytes helped specific symptoms.
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What they tried
What they credit
Also tried
Their words about each treatment
- Methylphenidate · Helped
my meds don't always work now ... Methylphenidate
- Hydroxyzine · Helped a lot
Hydroxyzine is a game changer. I just started taking it this week and I'm sleeping in to 10am
In context ↗ - Electrolyte mix · Helped
I ended up getting a bottle of electrolytes and I feel terrible if I don't use it.
In context ↗ - Saline nose spray plus lubricating eye drops · Helped
Saline nose spray plus lubricating eye drops are a must for me.
In context ↗ - Zophran · Helped
Hydroxyzine Methylphenidate Zophran
In context ↗ - Cocaine · Helped
When I do cocaine it fixes it. ... it's also really rough on the body
In context ↗ - proton pump medicine · Not said
I had to get put on proton pump medicine. It took me 4 years to get off them
In context ↗ - Xyzal · Helped
Xyzal and hydroxyzine helped me a good amount.
In context ↗
Approaches: H1 antihistamines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020 | COVID-19 infection; long COVID begins and they keep workingMy first infection was in 2020 when no one had any clue what to do.In context ↗ | Mild |
| over a year into the illness | first reinfection reset the long COVID symptomsThe long covid symptoms lasted over a year with no improvement, then I got reinfected.In context ↗ | Mild |
| 7 months after that reinfection | symptoms began to improvethe long covid symptoms started to improve after 7 monthsIn context ↗ | Mild |
| after that improvement | second reinfection repeated the symptomsThen I got reinfected again. This caused the symptoms to repeat againIn context ↗ | Mild |
| 6 months after second reinfection | symptoms improved againI noticed they Improved after 6 monthsIn context ↗ | Mild |
| September 2024 | last infection brought long COVID symptoms back brieflymy last covid infection I had the long covid symptoms but they cleared up in 2 weeksIn context ↗ | Mild |
| 24 October 2024 | feels 90% better than at their worst, still workingRight now I feel good and like It's 90% better than it was.In context ↗ | Near normal |
Adverse events
- “Mostly because it's nasty and gives me a sinus infection ... it's also really rough on the body.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Gut problems
Today as I write this I feel a little bubble acidity in my stomach but nothing terrible
In context ↗ - POTS & dysautonomia
This led to me getting light headed and fainting pretty normally at first.
In context ↗ - Tinnitus
I had a constant ringing sound in my ears.
In context ↗ - Pain & fibromyalgia
My chest always had this throbbing pain in my shoulder.
In context ↗ - Anxiety & low mood
I couldn't feel pleasure at all no matter what I did
In context ↗ - Sleep problems
waking up at 6am and tossing and turning for hours with no real quality sleep
In context ↗ - Headaches & migraine
my head has a slight pressure
In context ↗ - Flu-like symptoms
I would get mildly sick and have a fever for weeks on end
In context ↗
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